~ Debutaunt ~
May 13, 2008
Sending out some B-love

(blog love)

Susan is in the middle of treatment for breast cancer and having some bummer medical stuff going on. She's been pretty frustrated lately, but is a freaking amazing person. She's on my Twitter and is still such a bright spirit.

Just a quick assignment: Please go over and say hi and give S some encouraging words. I remember how much your comments meant to me when I was stressed or sad. (heck, your comments still mean so much to me and make me smile!)

Also, my sweet buddy Jeanne had one of her dogs die from pneumonia after eating a ROCK of all things. We met her when we were in Seattle and she had 2 gorgeous dogs. It just made me and Zoe so so sad when we heard the news. I don't care who you are, but losing a pet is just the same as losing a member of your family. Especially when you've had that pet for so long.

So, please also go give Jeanne some internets love. She's the coolest!

Feeling better today after some serious sleep.

Love you internets! And hello to any of my Twitter friends that stop by.

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Inso-maniac

Hard time sleeping. Kind of achy like I'm fighting a cold. Blah. But here's something cute to cheer me up.

Z with curly hair. Forget Hannah Montana, Zoe's cuter and funnier*. The girl posed like a cover girl. Now to work on her singing voice.

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And Welcome to My World


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May 12, 2008
Love

Totally in love with Amanda's niece Ruby Elizabeth. Isn't this just the most precious picture of all time?? Sweetness personified. How could you not have baby fever looking at this photo? If only I were 20 years younger and much much healthier, I'd birth my own baseball team.

amandas rudy.jpg

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May 11, 2008
Snappy Mother's Day

Happy Mother's Day to all my mom friends and to the dad's that act as moms.

Zoe's present to me. Hope you can read phonics too.

1. Why did God make mothers?
"So they can have ther babbys"

2. How did God make mothers?

"He made mothers so they can care for they babbies"

3. What ingredients are mothers made of?

"They are made of Gods and Jesus life."

4. Why did God give you YOUR mother and not some other mom?

"To love us. To care about us more than any other mom."

5. What kind of little girl was your mom?

"She was a brave littel girl."

6. Who's the boss at your house?
"My Grandma is the boss at my hous and my Mom."

7. What's the difference between moms and dads?
(AND OMG I CAN'T BELIEVE SHE WROTE THIS!!!)
"Moms don't have wenner and Dad work"

For those of you who don't get it - she said WEINER. OMG!! And golly. I worked for over 20 years.


8. What does your mom do in her spare time? (love this)

"She writes on the cuputer all day log and get Starbucks and gets Ice veteta lata (iced venti latte)

Notice how she spelled Starbucks exactly correct! That's my kid for shizzle.

9. What would it take to make your mom perfect?
"She would have more munay to buy thighs (things) for me and grou hirer (grow hair)"

10. If you could change one thing about your mom, what would it be?
"I would cages (change) not for her to go to the docter and the hostpel (hospital)"

Ok. Off to shop for stuff for grilled chicken bowtie salad stuff. Love to you internets and thanks debu_sweetie for the sweetest email of all time this morning!!

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May 09, 2008
Prelim

Called MD Anderson.

Preliminary Biopsy Results Show:

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May 07, 2008
Am I Awake?

The biopsy was as good as a biopsy can be. My technician, Terry, is awesome. She's the best and my favorite because she's hella cool too.

But it still hurts. Like a mofo. And I have a hideous bruise on my inner arm from the tape where they took a blood sample. I so look like a crack ho junkie now. (but that's usual, no?)

Dr. Q says I don't have GVH of the mouth. Then what the hell is it? He has no idea. Great. Tapering steroids starting tomorrow.

Labs look good. I got the all clear to go to Seattle for the summer. But of course.

I can do this. I'm very glad this day is over.

Good vibes for the biopsy results. I hate waiting, but still.

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May 06, 2008
As Funny as Ass Killing Can Be 2008

I'm reposting this (original from Feb 2006) as I get another bone marrow biopsy tomorrow at MD Anderson in Houston. I hate them. It makes me so nauseated just thinking about it. The last one I had done was a mess ah... ROOKIE TECH!!! I was sore for months (usually only sore for a week). I'm dreading dreading dreading this one. I don't know if I could even handle a result that tells me I've relapsed. I am not even going to mention pain. This is the most painful test they give us.

My lovely longtime reader Pam C just passed away. As did a very brave Alabama boy named Zach. I lost track but I think that makes 30. Please pray/send good vibes to both their families. Pam was a sweetheart and used to send Zoe letters and drawings and stuff. She had 4 cats and a spirit that just was so sweet. I am just a little numb over this.

Ok. Must force myself to pack. I always hate this drive!! Love you!

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May 03, 2008
May 5th - 19th Thank Yer Mom by Saving a Life. And Pie.

I had leukemia and needed a stem cell transplant. My awesome brother was my donor. And I am one of the lucky 30% of patients who have a related match from someone in their family (Good Catholic family with six siblings - whew!).

I'm now still alive two years later solely because of my transplant. As of today, literally, I have now lost 30 friends in those 2 years to leukemia or transplant-related complications. I promised my "freakishly strong" friend Brenda Donato that I would never ever ever give up trying to find a cure. That I would never let anyone forget her or what she went through. I made my daughter promise to continue that mission as well. teamzoe.net (she's pretty gung-ho this year & wants to raise $30k)

The National Bone Marrow Program is here to help the many patients who do not have a match. Please consider joining the registry. The procedures for donating are not as hideous or painful as shows like Grey's Anatomy and House show them to be (um, can you say sedation? Painkillers? Apheresis?). My brother did his apheresis and drove from Houston to Austin the same day as his donation. I gave him a lemon meringue pie (per his request) for saving my life. I could never repay his gift to me; except by living a very long, stubborn, happy life. And by trying to spread the word to help others.




(go here to get your own cute blog/myspace widget)

Or a banner:


Donor Garden

I'll be writing more posts on the drive. Seriously. If you are not registered, you can register at a donor drive for free AND ONLINE during the Thanks Mom Donor Drive. Just a cheek swab kit mailed to you - kinda like those cool CSI DNA tests.

It sounds scary, but imagine if one of your loved ones (or you) were going to die because they don't have a match. What if you knew that there is someone out there that could save their life? That the donor probably has no clue about the program or that a simple donation of some stem cells (no, not embryos - don't go there) could be their only hope for a cure. Save a life. It's the right thing to do. And you might get pie. Or Pi. Or both (for Kiera)

When you become a bone marrow donor, you join the global movement of more than 10 million donors who stand ready to give someone a future.

That "someone" was once me. I'm so grateful to still be here to talk about it.

And if you end up donating, I promise I will send you a pie!!

My stem cell transplant month posts if you are interested in what happened then.

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May 01, 2008
Killing time before soccer practice

70 Questions Guaranteed You've Never Answered...

Or have I? I am pretty weird.

Stolen from Cariskicker.

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Time for a few pictures

The Zoester, with my debu_sweetie, Tim.

Zoe ferry ride.jpg Zoe ferry ride with Tim.jpg

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Zoe in the snow, soaked, but having a total blast with Tim and his two girls (they are adorable!!). That was such an amazing day. She LOVES the snow. Next time, however, waterproof clothes and boots are in order! Love the mountains. I can't wait to go back to visit (most likely early June through end of July)
zoe snow mountains.jpg

These are from my cell phone. The scenery was so gorgeous that I wanted to just look instead of trying to take amateur photos. The first few were on the ferry to Bainbridge Island. It was a really chilly day and Zoe was uber hyper, but I still had a great time even though she was buggin.

Here are some real pictures of our view. These are such realistic shots of how beautiful it is there.

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Ok. Unpacking and doing laundry. Very exciting day. I really miss Seattle and my sweetie. I love wearing sweatshirts, hoodies and sweaters. I'm in flip flops and shorts today. It's going to be in the mid-80's. I HATE this weather. It makes me itchy.

I can do this. I'm going to Seattle in about a month.

Your assignment today is to say hi. Not creative, but just wondering who is out there sometimes.

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April 30, 2008
Survivors Kickin Ass!!

I'm going to pimp Diana's link for her Team in Training efforts. I'm always amazed when people who have/are going through treatment are up for training for an event and actually completing one.

Dear Debby:

Well, amazing as it seems, it's been almost a whole year since I did the Mayor's Marathon in Anchorage AK to raise funds for the Leukemia & Lymphoma Society.

Thankfully, I'm still in remission. I'm coming up on the 2 year anniversary of my cancer diagnosis. Hopefully, if I continue to stay in remission, I'll finally be able to have my port removed by the end of this year.

I've been keeping up with the physical training routine and in a few days I will be participating in the Cincinnati Flying Pig Marathon with the Leukemia & Lymphoma Society's Team in Training program. I was hoping to be
able to complete a full 26.2 mile marathon but my old body has told me to think again, so I'll be doing the half marathon this year. I'm determined to be physically strong enough to do a full marathon some day, but right now I'm just grateful to be upright & moving :-)

If you are in a position where you able to once again contribute to the very worthwhile mission of fighting blood cancers with the Leukemia & Lymphoma Society, please click on the link to my website. I've started my fundraising
a little late this year, but I'm hoping to still reach my goal of raising $2,000 before the end of May. (she has only about $365 so far - let's help a chica out, debu_peeps)

I hope that this e-mail finds you & your loved ones in good health & that you are enjoying this Spring season.

Thinking of you & wishing you all the best...

Diana


"In 2006, I was diagnosed with an aggressive form of non-Hodgkin lymphoma. After some hardcore chemo, I kicked cancer's butt to kingdom come. In June 2007, I celebrated by participating in my first Team in Training event, a half-marathon, on the exact 1-year-to-date anniversary of my cancer diagnosis. How sweet it was to be able to cross the finish line under my own steam and in remission!"

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http://www.active.com/donate/tntsoh/DianaKlau2008

I can do this. Because of people like Diana! Go D, go!

Your assignment is to donate $5 - $10 to Diana. I know I'm always asking for money, but having a survivor raise money for a pretty grueling event is really special. It inspires me and so many others to see that cancer does not own us!!

Love you. And especially you. Working on my Seattle posts, but I'm still gushy and loving that city and my Seattle folks.

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April 28, 2008
Snow Day

It's early and I'm not caffeinated enough, but wanted to check in a llittle bit.

This has been such a great trip. We went to see Jeanne from Assertive Patient Saturday night for pizza and some time feeding baby kittens. Zoe named her kitten Zoe. She and Tim's daughter K were expert kitty feeders. They are so tiny and cute and when they drink from these little teeny bottles, there bellies swell right up. I hadn't ever seen kittens that small before and Zoe worked the please-can-we-bring-home-a-kitty face.

Jeanne is totally cool. We had pizza and salad and just hung out and talked. I totally dig her style as she's really eclectic and has amazing taste. Her house was so gorgeous and was the kind of place that was both beautiful and comfortable and filled with love. We had such a fun time. Zoe was ready to go back the next day and I really hope to be able to spend time with Jeanne this summer.

Yesterday we visited the Snoqualmie Falls. It was perfect weather for sightseeing and I was completely blown away at how beautiful it was there. It is a very romantic setting and there was an outside wedding going on at the resort overlooking the falls. i watched a little because the guests were so gorgeously dressed up, although I didn't see the bride. I couldn't think of a more romantic setting for a wedding. But that's probably because I'm in love with Seattle. And no, I didn't take this picture. I took a few, but they could never be as lovely as this.

snoqualmie2.jpg

Then we went off to see some SNOW! I haven't seen real snow in over ten years and Zoe has NEVER seen it before. We drove up about another 30 minutes to (I'll have to ask Tim later obout the name of the pass we went to) and the kids donned some warm gear and went and climbed these huge snowbanks. I am sure they were freezing as we didn't have any waterproof clothing or shoes, but at least there were fire pits that they warmed up at later. Zoe had such a great time there and said it was her favorite thing so far that she's done here. I can totally see her becoming a skier if the occasion should arise. She is a natural snow bunny.

We've seen so many places here. It's just gorgeous and amazing. I can't wait to come back again to keep exploring. The weather totally suits me too!! We're having a blast.

Ok. Off to find some caffeine and food.

I can do this. I listened to hours of Hanna Montana yesterday. (While Zoe and K sang duets to us)

Your assignment today is to tell me your favorite vacation experiences to date.

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April 26, 2008
Seattle = Awesome

Quick am entry before the chirrens get up and going (Z and Tim's two girls).

Seattle is soooo beautiful. There's something about the weather and the beauty of the city that makes you feel alive. I can totally understand why Starbucks started here because there is so much to do that you just don't want to go to sleep. And yes, I saw Mecca aka Starbucks headquarters; however, there are so even more *gasp* awesome coffee places here. I had the best iced latte from this little drive thru shack. It was HUGE too. Like a hot tub of latte.

I haven't really taken many, actually any, pictures here because I'm loving just experiencing the city and there aren't any pictures that I could take that would do this place any justice. I stopped at this little travel shop in Bainbridge (after taking a gorgeous ferry ride) and bought a this beauitful picture travel book.

Zoe is completely in her element. Tim has this giant projector tv that projects onto the wall about 110 inches. He also has the cool toys which includes a wii and a sirius radio surround sound. Zoe loves wii. She and Tim's oldest are now playing boxing and it is crazy funny.

Ok. How could you not adore a guy who runs out to get you a special iced coffee?

I can do this. I'm very much at home.

Your assignment for today is to get outside and enjoy. I know I plan on it.

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April 23, 2008
Seattle. Packing. Beyond Excited

We are headed to Seattle after school today. I've never flown with Zoe, but she's been on a plane a few times with her father, so I am sure she will do well. Especially since she's got some gadgets - Nintendo DS and books and stuff.

Tim is just so cool. I cannot wait to see him again. We have some great things planned for this week. I really am beyond excited to go because it's a part of the country I have never visited before and, well, *whispers* Tim is there.

The only downfall is that I have to wear a mask the entire time in the airport and on the plane. I think that's about seven hours total. It makes me feel like a freakshow, but if it keeps those oogie germs off me, then who cares? Zoe is going to look perfectly adorable. She wanted to wear this cute funky patterned dress with her leather jacket and these little wedgie heels. She has a matching purse/wallet, and wants to wear her sunglasses. Um. Hilarious!

Ok. Much to do. I'd like to go somewhere without wearing a ball cap for a change. This entire week I've been hoping What Not to Wear wasn't videotaping me, because I've been looking just too ridiculous.

I can do this. I'm going somewhere it isn't Africa hot (it was 90 here yesterday - APRIL - AHHHHH!!!)

Your assignment today is to say bon voyage! Love you internets!!!!

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April 22, 2008
Safe Journey, Laiken

I fucking hate leukemia (no apologies forthcoming for the f*bomb either). Who doesn't know a lovely 13 year old girl?

Love 4 Laiken

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This is not ok. Please help us find a cure by donating to Team Zoe. Parents should not have to make these kinds of decisions.

" TUESDAY, APRIL 22, 2008 01:53 PM, CDT

Jim and I have made our decision......we just talked to Dr. Kapoor and really the machine is doing all the work for Laiken. She is starting to have some irregular heart rythyms and I really think it's just her time to spend eternity with our Lord Jesus Christ. Her oxygen levels still keep going down and now she is in the mid 30's at the highest and we have even seen some high 20's. A pastor from our church is on his way as of right now.

Jim and I have made the decision to stop some of Laiken's meds and just let her go peacefully. We will have them give her lots of pain meds and then stop the Dopamine. They will take the tube out of her mouth and let us have some time with her until her little spirit goes to heaven.

I can't believe that we have come to this point in our lives where we have to make a decision like this. Laiken has faught for so very long and so very hard that it hurts to see her go like this. I never thought that this would be the way that we would have to see her go. I do know that when the time comes that Laiken has more than earned her wings in heaven. She has taught so many of us so much in her only 13 young years of life here on earth. I had hoped for so much more for her here on earth and now I have to let her go. She has blessed so many of us in so many different ways and again I will say "I am so proud to be able to be the one who she called Mama", I just hope I was a good enough Mama for her. She loved life to the fullest and I know she will light up the heavens above with her beautiful smile. This will be our loss here on earth from such a perfect child.

Please keep us all in prayers.

With much love and my deepest sorrow, Stacey"


God bless you and your family, honey. Fly free. We will keep fighting for you. I showed Zoe your website and talked to her about our responsibility to keep fighting for a cure until no one else gets cancer. That even when I'm gone, she must continue and her children must continue to help. I am so saddened for Laiken and her family, but I am determined. I get discouraged fundraising sometimes because I'm always always asking, but I will never give up.

Because I know exactly that feeling of leukemia striking at any time. It doesn't discriminate. I have seen all ages, all races, all financial backgrounds ~ all stuck in the waiting rooms in hospitals all over the world. Some living and some dying. It's horrible, as all cancer is. It's horrible on you, but moreover, it's excruciating for your loved ones.

Update:

"Dear Family and Friends,

Our precious Laiken has gone to be with our Lord at 4:36pm today. She is celebrating with the Lord and all of our loved ones who have gone ahead of us. Please keep all our us in your prayers.

With our deepest sympathy, Jim & Stacey"

I can do this. I owe them all. Just too many loved ones to list. It's hurting my heart.

Your assignment today is to send prayers (good thoughts if you don't pray) to Laiken and her family and loved ones. Thanks

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Sending out some B-love
Inso-maniac
Love
Snappy Mother's Day
Prelim
Am I Awake?
As Funny as Ass Killing Can Be 2008
May 5th - 19th Thank Yer Mom by Saving a Life. And Pie.
Killing time before soccer practice
Time for a few pictures
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