November 18, 2005

My Girl Methotrexate

"Methotrexate is a Dracula Blood-fighting (chmotherapy) drug that interferes with the growth of cells. It is usually given intravenously (into a vein), but it can also be given into a muscle, under the skin, orally (by mouth), or intrathecally (into a fluid-filled space next to the spinal cord). It is used to treat many different types of cancers."

Ok. Sounds intimidating. But let's check back to the jiggawhat intra. the. cally.

This is my third time to do intrathecal chemo. But gosh, could they make it sound any more intimidating?

"Today you get a lumbar puncture, and will have the mexotrexate given inter.the.cally (into your motherf*cking spine)." Ok, so the guy didn't say motherfu*cking spine, but I think I would have liked it better if he did.

And lemme just first say ouch. ouch. ouch. I got some numbing stuff and something to take the edge off, but there's nothing like having a 4 inch needle fixin' to go PUNCTURE your spine, remove some goo, and then get replaced with some radioactive liquid. Makes for a hot ass pain. Then you get to lay flat for an hour. A wee bit high and sore.

Inter.the.cally. Glad it's not intra-fecally though, yaknowwhati'msayin?

Is thecally Latin for your most precious spine? Cos, dang, of all the things that scare me, Lumbar puncture is a bit intimidating. It's also called a spinal tap but has nothing to do with going to 11 except maybe the vision of that HUGE ass needle - like the king of all needles. Spinal tap sounds less scary than Interthecally or Lumbar/Spinal PUNCTURE.

Methotrexate. Sounds like a ghetto girl name. "That girl aight. Methotrex, she got a good head on her shoulders even though her momma, she on *whispers* the crack."

Methotrexate. Just another trex in the line of cristines, rheumatrex, whatever. Why can't they nickname them or something. This one is yellow. Today you are getting bananas and tomorrow you get skittles. If you're good, you will get some egg custard.

I like to pretend that the clear ones all go down and mix like a martini into my lovely brooch/pteryldactyl that is my central line catheter. This thing sewn into me that goes in a huge vein near my jugular or heart; I'm not sure.

See how pretty it is. it matches my earrings and goes so well with this peasant blouse.

brooch.jpg

{aside} My skinny jeans are big. If I have to go through this shit, I'm going to be one bitch that loses weight - 22 lbs to date. I hate lounging in pjs so I'm glad I brought my jeans, but guess I didn't figure I'd need a belt so bad. Oh well, now I have some low ride jeans to go with my IV tower. So sesssssy.{aside over}

The side effects sheet for Mexotrexate are three pages long. The start off innocently enough: nausea, vomiting, diarrhea, mouth sores, skin rash, sensitivity to light (damn, no tanning beds either - gotta look tan when your barfing your guts out).

Then it starts getting a bit huffy: low white blood count (uh, duh, the point), usually develops 7 to 10 days after, chance of getting infections increases avoid contact with people who have colds, flu, shingles, chicken pox, or any type of infection. Great. Avoid the City of Houston.

Low red blood cells: you may tire easily or become short of breath. No sh*t Sherlock. A flight of stairs winds me, but I did a lung capacity test and the dude said I'm an amazon. But then again he said I'm 5'8 3/4ths. Um. I'm 5'10. Whatever. Shorty. Test = Amazon; Stairs = wimpy

Low platelet counts: Bruise, bleed, no shaving with anything but an electric razor and avoid cutting stuff. Glad I'm not a chef, I'd go bananas.

Decreased kidney function: Oh. Thought we'd slip that one in along with his cousin Decreased liver function. No big deal on those. Right? Right?

Scarring of the lung tissue: *gulp*

Hair loss or thinning: too late

Neurological effects: call your doc if ou have confusion, dowsiness, clumsiness, difficulty walking, blurred vision, slurred speech, difficulty speaking, difficulty swallowing, numbness, or seizures. What? That's a typical debutaunt_day.

They save the intra.the.cally ones for last as they are the best:

For patients who will receive methotrexate intrathecally (which I just did on top of going on 14 hours of intravenously - 8 more to go)

Inflammation of brain tissue. Common symptoms: headache, nausea, vomiting and fever. NOOOOooooooOOOOOO. No more fevers. I can't take those. They wipe me out *sob* damnit... ok.. sniffle. i can do this.

Neck or back stiffness and pain, which may develop into sever drowsiness, seizures, numbness, inability to move, or coma. Tell your doc immediately about any of these symptoms. How. After you slip into your coma and aren't able to hit the nurse call button.

Ah. Harmless chemo cocktail. Not quite the cosmo on Sex and the City, but it sure beats death. And if it helps me kick some cancer ass, I'm all gung ho on this shit.

mexotrexate.jpg

8 bags of cocktail. And the anti-nausea stuff is soomybestfriend. I even ate a reuben at lunch.

I can do this! Exclamation point!

Posted by debutaunt at November 18, 2005 02:44 PM
Comments

I have been reading your blog for a while, since you were diagnosed, actually. You are an amazing woman, and your writing is great. Reading your posts takes me to my way back, when I was an oncology nurse. I always felt the worst for the "leukemics" as we called them...one day, they're fine, the next BAM mother-f-ing-leukemia, and life has changed just like that. AND not only do they have this, this, THING, but they also have blood counts that are scarey as shit.
I believe you will kick it's ass.

Posted by: esther at November 18, 2005 03:58 PM

Can I just say?
Last year, on the beach on cape cod?
Central lines were ALL THE RAGE.
I shit you not.
We saw three or four people with them and, after a time, I realized that it was a popular look.

But truly...have as good a weekend as you are able and now that I will be thinking of you.

Posted by: blackbird at November 18, 2005 05:38 PM

OK, Deb, stop being so funny. And the haikus were wicked funny.

Anyhow, we got some kind mail to the Deb Fund today. Let me share excerpts from California to Santa Fe, (Texas, that is), from New York to Houston:

"...so just know that Debby and you have hugs coming from cyberspace, with fervent hopes that she beats this cancer."

"Wishing you all the support you need and may the days be few till you're well again."

"Hang in there girl. I truly believe that you will beat this."

"I know you can do it!"

Where is the kick cancer's ass emoticon when you are looking for it. Maybe this? kUU Or not.

Posted by: Sis#1 at November 18, 2005 07:27 PM

u are awsome hun:) u continue kicking ass love ya girl
many a prayers ur way!

Posted by: beth at November 18, 2005 08:00 PM

Sigh. Girl, I'm weak in the fucking knees after reading this. I am praying for you, EVERYNIGHT.

Posted by: Y at November 18, 2005 10:53 PM