"Today was a very trying day. I let someone upset me when I shouldn't have. I watched helplessly this morning something that made me very sad. I didn't get to talk to two people I absolutely wanted to. I sadly unpacked four years of belongings from my office. And I mourned over my old life while sitting in my apartment.
I didn't get to see Zoe this weekend. I was hoping that would happen, but they are all sick over there and I can't take any chances before my next round of chemo - which is Tuesday.
I tried to talk to Zoe on the phone, but someone pulled her hair and she cried. So I didn't get to hear her or talk to her.
I'm listening to Charlie Brown's Christmas CD to try to cheer up, but it's not doing the trick.
I miss Zoe tonight. I'm going to go to bed and call this one a wash."
I wrote that last night and wasn't going to publish it. After all, I'm not allowed to have bad days. Right? Right?
Well that's how it feels. I try so hard to remain positive, but then there are days that just simply overwhelm me. There are days that it is too much, and I can't remain patient with others. I feel like I'm dealing with some serious issues, and when I hear people bitch about the little things, I just feel like I want to punch them in the face. It's like being around uber perky Katie Couric 24/7 and she's debating the merits of pointy shoes versus squared toes.
You spent 20 minutes trying to find a parking space? Christmas shopping at the mall is so crowded?
Know what, I'd like to simply be able to drive. And go to the grocery store without being out of breath or having the threat of germs that might end up making me terribly sick. Possibly kill me.
Boy, it must suck so hard to be hungover.
Gee, I had a spinal tap and had radioactive chemicals inserted into my spine today. I'm going to have a headach that lasts for two weeks, and no amount of Darvon will make it go away.
That's pretty much a typical day for me. I know that no matter what your problems are, they always seem to loom large. But there are days that I just have no sympathy.
In the span of less than a month, I did my will, my living will, my divorce, my power of attorney, my medical directives, found a guardian for Zoe, learned I had cancer, realized I won't see my child regularly, heard I won't be able to work for a year or more, found out I have a chromosome anomaly and will need a bone marrow transplant, contacted friends and family with my diagnosis, started chemo, was hospitalized several times for fever, lost my hair, lost my independence.... and shit. Here I am bitching about the little things.
I think I'm just cranky.
It's so easy to become self involved with this disease. It encompasses your entire life, your every waking moment. Everything you do is an ordeal. Things you easily did before somehow now are near impossible. Things that you took for granted before now become lifelines. When you face death, it causes you to become selfish of your time and your life. Your priorities are shuffled on a daily basis. How can I figure out how to not bleed to death today?
I wish I had some project or a hobby to reoccupy me. To refocus outwardly instead of constant self-absorbtion. It's annoying. I often have "chemo brain" and can't focus on things as easily as I did before. I'd love to take up the trendy knitting thing, but it doesn't seem like something you can just pick right up. Or I wish I could adopt a family for the holidays, but that's a huge undertaking and I would hate to not have the follow through. I want to get out of my head. And get away from this disease for a while.
Just like I think sometimes people's problems are pretty minor, my problems are minor in comparison to some.
There is always someone worse off than you. And I try to remind myself of that every day. I could have been dead. My cancer could be terminal. I could be starving in Africa. I could have been horribly disfigured or incapacitated. (Hey, even Katie Couric has horrific days - her husband died for God's sake - young, too early, from cancer.)
And those people who are in worse situations than I am, do they feel the same as me? Do they think, gosh, I'm paralyzed from the neck down, but at least I'm not dead.
[aside] I'm thinking death is the ultimate in the suck of problems here.
I honestly think I need to be less judgmental. That if my friend has a hard time shopping at the mall, I should be sympathetic and just let it slide instead of having that little voice in my head tell me I should be rolling my eyes at that point.
But how do you have a complete paradigm shift in your thinking? How can you evolve past the voices in your head that tell you someone is a complete tool? Or is it just me?
I think this is going to be yet another quest I have in my life. To be less selfish and uncaring. To get out of my head and stop judging.
I'm sure I can do that.
Which leads into today's assignment:
I want you all to not complain or even think about any complaints today. I want you to think about someone else in a worse situation and become an extension of goodness and kindness today (and hopefully past today). I want you all to do something completely unselfish just because you can. To contemplate your life and to be grateful for what you have, and to do something kind for someone who needs a break today.
Your boss an asshole? Buy them a small gift and leave it anonymously on their desk. Friend complaining about her jackhole boyfriend again, give her a big hug instead of an earful of the same advice. Buy some canned goods and drop them in the red barrel for the food pantry, or buy a little extra gift for the gift tree for the poor.
I used to pass this horribly dirty homeless woman nearly every day coming out of the parking lot at work. She was fairly obviously mentally ill. There were so many days where I just wanted to buy her a real meal for lunch - not McDonalds, but maybe a nice Boston Market-type chicken lunch or something I made at home. Or give her my extra coat that just sits in the back of my closet.
I never did. But today might have been a day that I did something like that.
There is always someone worse off than you. Be kind to that person today. Get out of your head today. Just because you can.
Posted by debutaunt at December 11, 2005 08:08 PMInteresting post. Here is a good article about the role of judgment in our lives and what you can do about it:
http://www.delos-inc.com/Reading_Room/Articles/17/17.html
Posted by: Bev at December 12, 2005 08:18 AMWould it be possible for you to take a small box of toys (inexpensive, or you could do a quick toy drive online) to the children's ward at the cancer center? And show them what a brave, bald goddess you are and how you are fighting?
It might help. Def give you something to do before the holiday.
Posted by: sally at December 12, 2005 08:43 AMHere's the thing, if before cancer you would have rolled your eyes and thought someone was a tool, I don't think you need to get past it because sometimes people are tools. If you only now think that people are tools and it's only by comparison to your current medical situation etc., I don't think you need to get past it because sometimes people are tools. I guess what I am trying to say here is that sometimes people are tools.
Posted by: Some Girl at December 12, 2005 09:38 AMDarling. I find it rather funny (although that really isn't the correct word) that you write this today. Yesterday I had one of my annoying headaches and I was having a little "whine with my cheese". Then I thought to myself "WTF! I'm sure that Deb and Minerva would LOVE to be in my situation right now."
xoxoxo
Trish
Posted by: Trish at December 12, 2005 10:23 AMThanks for this. You are so right. I really needed to hear this today. After all, isn't this the center of what the Holidays are really about? :)
I am praying for you and your recovery.
Posted by: Dillygirl at December 12, 2005 11:20 AMFirst I want to say that I visit your site every day. You are a fighter and I know that you are going to be 100% healthy, faster than the doctors or even you can imagine.
Why don't you try scrapbooking as a hobby. It's easy to pick up and put down and you don't need to be a "crafty" person to make beautiful albums. You can find Zoe's baby pictures, slap them down and write her notes about all of the silly things she did as a baby that only you remember. My daughters love going through their scrapbooks and they don't care about the fact that I couldn't cut a straight line to safe my life.
If you are interested, send me an email (JuliannaRS@aol.com) and I will send you a care package of the stuff you need to start!
Posted by: Julie at December 12, 2005 11:48 AMI think it is probably important to your healing that you have bad days. I think you have a right to be cranky or pissy for a day.
I did something special for a family who needed something special...and I thought of you.
Good lord,sister, if you want a hobby or something to occupy your time, like scrapbooking or just even putting photos in albums, I have about 8 years of picture sitting in boxes and on my computer and camera that I would love to be taken care of. Pictures of my kids are about the last thing I ever have time to deal with.
And it was probably pretty crappy to have someone serve poop in your egg nog, give more log than Yule, wished you sad tidings, suck the red off your candy canes, have more in common with Scrooge and the Grinch - (I cannot think of anymore bad Christmas saying). I can hardly believe anyone would be so awful to you.
Sounds to me like this person may have some serious issues. Tis the season to be stress out. I'm sorry she hurt your feelings.
Merry Christmas?
Just stopping in to say hi, Deb!
Cheers,
Ben
Sorry but poop in your eggnog...? That's a new one on me ;) x
Posted by: Lynne at December 12, 2005 04:35 PMOnce I get my final "clean bill of health" tomorrow (I'm holding out for it), can I come and teach you the basics of knitting? Just the knit stitch is pretty easy, and might give you something to occupy your time. Or bore you to tears.
I've been thinking of you often, and you're in my prayers. Whenever I felt like whining last week at the hospital, I realized that it really wasn't that bad... I'm so sorry you are having to go through all of this.
Posted by: Christine at December 12, 2005 07:21 PMlove you.
Posted by: Maddie at December 13, 2005 11:42 AM