February 23, 2006

Damn You Cafe Express

I hope to never go to the radiation clinic EVER AGAIN! EVER EVER EVER. I hate that place.

They woke me up an hour early this morning and told me the transportation dude was there. They lie. How dare they interrupt my sleep again? Bad enough I get the 4am waking for vitals, 5am for blood. Now they wake me at 6:30??? I didn't leave for an hour.

Anyway, I did have a little hall waiting today. It was unpleasant. This dude walked by and didn't even look at me. I felt like sticking my foot out to trip him. What a pisher.

But at least I'm done with the radiation. Woo. Whew. I hated that.

Tomorrow I have a mega chemo dose and then two days of rest. February 27th is the big stem cell donation day. I hope I feel ok. I'm kinda tired.

As for Cafe Express, a local restaurant with yum food, has been running these ads for a Greek salad. Not on the menu of a stem cell transplant patient dangit. They tease me, they tease me. That and Taco Cabana. The food bastards.

I am still doing ok. I have the too much spit thing going on, but now have swollen neck lymph nodes and it is like having strep throat where you can't really swallow. I'm still eating because I can't stand to take meds without food as it makes me sick.

I'm working on tightening up my resolve. My friend Ashley, who is another BMT patient, was supposed to be released the other day. She now has a fever and hasn't eaten solid food in three weeks. I get kind of afraid of being here. That I might get some kind of infection due to someone's carelessness. That would be like way way bad, possibly could kill me. So far, they haven't made me feel too safe here.

So I have to remind myself of things.

Giggle Bear!
giggle bear.jpg

Zoe Bear (no. she's not wearing makeup)
Mar20015.jpg

And Sis #1 hung up my autographed Uma picture. I want that steely look in her eyes. I meditate on that at night and picture myself kicking cancer's ass. I adore that picture. It is such a great reminder of my hope. My determination. My future. I just have to remember that when times are hard.
watch out.jpg

I can do this. I'm armed with tools and love.

Your assignment for today is to remind yourself of your priorities. To remind yourself of your strength. Your determination.

I had some assignments around New Years about goal setting. Dr. Phil's - How's that working for you?? Did you stick to them? Did you give up? Remind yourself of what that was and then remind yourself about why you can follow through with it. If you did give up, it's not too late to start over. Who says that you can't have President's Day Resolutions.

Posted by debutaunt at February 23, 2006 03:16 PM
Comments

Fasten your seat belt Debuma, Queen of Delft.

It's time for the mind games we play.

1. You are really at the Ritz
2. The Ritz is in Paris
3. Salads suck
4. Uma hates fruits and veggies
5. Try and spit...Uma does...
6 Eat, eat, eat
7. We are realy at the Ritz in Paris
8. Zoe, Monkey Boy, your family, all of us
we are here. Nobody is going anywhere.
9. You are the one that is going to do this
and you have help.
10. The chemo-we call that "the love juice"
(ok if one person is rolling their eyes
I will come and find you)
11. All these drugs, and all these medication
they are your ticket out of the Ritz.
12. The transplant part-that's a walk in
the park. YOU ARE DOING GREAT.

Love,
Nikki

Yes I will be back...When Eclectic went away
we were in charge of posting for her. Now
we are in charge of posting for Shoshie.

You can do this...cuz you have all of us.

Plus I can speak Jive like they did in Airplane :)

Posted by: nikki at February 23, 2006 04:41 PM

Who is that I see in the Uma picture?

Posted by: D at February 23, 2006 04:43 PM

i love the way you share with us your experiences in such a real, direct way as well as how you feel about it. i am personally wishing and praying for nothing but good days for you and to feel better each day! ;)

p.s. my GOD zoe is so darling.

Posted by: Sarcomical at February 23, 2006 05:10 PM

That bear was enough to make me smile! That thing is adorable. And it does look like Zoe has permanent color on her lips! How beautiful is that?

Posted by: jlybn123 at February 23, 2006 05:59 PM

Hi Deb
Your daughter is the most beautiful little girl. She is stunning, and the hair; i would give anything to have the curls.
You’re right when you say, "you have to watch out for someone else’s carelessness" because as you said, "that would be way bad". You have to be the super strict "Hall Monitor". No one can enter your SUITE without going through your screening, no colds, coughs, or even a tickle in their throat. Well meaning people do the craziest things. Here is a new motto for you "Be the QUEEN and SCREEN all of your guests. When in DOUBT kick them or KEEP THEM OUT".
You are going to do great. You have your Blog team rooting for you.
Peace and prayers
nancy

Posted by: Nancy at February 23, 2006 06:28 PM

When I was in it was the Cookie Crisp commercials. I became obsessed about how good it would taste. When I got out I decided that nothing could taste nearly as good as my imagination. I still have never had Cookie Crisp. But my memory of how good it tasted in my BMT imagination is still there.

Keep it up, you're kickin butt!!

Posted by: Mr. Fancypants at February 23, 2006 06:29 PM

I love it when you post pictures to go with your words. Zoe is so beautiful. Such perfect lips. And she does look like someone gave her some eyeliner and eyeshadow. People pay good money for makeup artists to make them look like that. Did I say beautiful already? I have to say it again. She's just beautiful.

Posted by: karen at February 23, 2006 06:54 PM

xoxo

Miss you chica.

I'm still cheering from the stands.

-R

Posted by: Rachel in AK at February 23, 2006 07:27 PM

First, I cracked up at "the love juice"; fantastic!!

You're done with radiation, and that just ROCKS!! You have Giggle Bear, beautiful little Zoe, Monkey Boy, and UMA!! YOU HAVE UMA!!

You are so going to kick ass, and i'm very proud of you. You are always in my prayers.

God Bless You.

Posted by: Dawn at February 23, 2006 07:35 PM

Your beautiful little girl is indeed inspiration enough to bring you through successfully. You will kick cancer's butt so remember that lots of folks are out here in cyberspace rooting for you and sending good thoughts your way.

Posted by: Maria Morris-Burke at February 23, 2006 07:43 PM

Just wanted to say hi and congrats on being done with radiation. Zoe is beautiful!

Posted by: Busy Mom at February 23, 2006 07:57 PM

OK-she's baaaaaaaaaaaackkkkkkkkk.....

Now where can I get a monkey like you have????
And BZ as in Baby Zoe she is stunning. When
she is 13 I suggest locking her up. Those boys
will be beating down your door.

Just pretend this is Shoshie and not me...OK.
And Lisabeth is coming here where we live.
Hell I am going to be posting for all these
SWLF. But Lisabeth can do her own tomorrow.

OK ROLL YOUR EYES....Make people wear masks,
any and all visitors. I was the police for
Sarah. If you were a visitor you wore a mask.
Even though at the desk they make you sign
a form saying you were well. I had my own
rules.

Just say no to cooties.

BTW. Dr. Phil get's on my nerves I wanted
to share that with the world.

I hope you are working on your visuals. Start
humming the theme from the "Love Boat" for
when they start the IV with "the love juice".
Imagine the whole cast of the "Love Boat"
singing to you.

Despite the fact I have to as you would say
get up at "the crack of crack" I will be
back. I will see if I can find a joke in my
mail.

Go UMA

Love,
Nikki

Are you having Yiddish withdrawls?

Posted by: nikki at February 23, 2006 08:32 PM

Hi!
I came here by way of Eclectic and am sending some love.
(((DEB)))
Your daughter is stunningly beautiful.

Please get well soon and remember:
You are at the Ritz.
In Paris.
The salads taste like dirt from the back of a stadium after a six day heavy-metal concert.
Uma hates fruits and veggies.
Just like Nikki said.
Keep fighting, fierce warrior. You will beat this cancer.
Kick it right in the toosh.

Posted by: M_D at February 23, 2006 09:02 PM

I don't even know how I found your blog, but I now read it every day and I will begin to pray for you as well.I don't know you, but that doesn't matter. Prayers from strangers are still prayers. I just moved from Texas to Louisiana and I am familiar with M.D.Anderson and Houston.In fact, one of my former students is a nurse there.They will take care of you.

Posted by: Sandy at February 23, 2006 09:47 PM

UPDATE:

THE FDA has closed down the restuarant chain
Cafe Express-seems they found roaches in those
Greek Salads....ewwwwwwwww

Nikki

(you so don't want a salad)

Posted by: Nikki at February 23, 2006 09:48 PM

Zoe is a heartachingly beautiful. What good medicine that face must be. And I am ALL OVER the President's Day resolutions. Thank you for that 'nother chance :)

Posted by: Susie at February 23, 2006 10:20 PM

Dear Debutaunt:
I came here from Manolo's blog. I am writing to wish you a speedy recovery. I saw my mother go through chemo and radiation; it is a horrible thing to have to go through. But I am sure you will come out a stronger woman than before. Keep fighting!

Posted by: pinkmirage at February 23, 2006 10:29 PM

Cafe Express and Taco Cabana are nasty anyway.

Zoe is absolutely GORGEOUS.

((((HUGS))))

Posted by: Kami at February 23, 2006 10:31 PM

I dont remember my progress when I posted it, but my goal this year is to lose 100 pounds. To date, I am at 18 lost :)

Posted by: Lucky at February 23, 2006 10:35 PM

Your daughter is lovely.
Glad that you are doing well, I've been reading about you as per instructions from Nikki and Kami!
Sending you lots of good thoughts, I'll check back soon!

Posted by: Recovering Straight Girl at February 23, 2006 10:40 PM

Queen of the Universe:
I have an assignment. Shoshie gave Lis the job
of posting the Yiddish for the next few days.
Lisabeth is going to go and visit my sister's.
Shoshie's HUSBAND calls me and said "Rachel"
you are on for the Yiddish lesson.

I am confused are you?

My favorite Yiddish word is Momzer which means
bastard. You could have used that word when
they woke you up today, and when you sat in the
hallway.

Zoe is so pretty. I wish I had her hair and
her smile.

Tomorrow I will do a prayer for you on your
web page in Hebrew :) I will translate
the meaning (maybe).

You are the first and last person I think of
each day.

Love
Rachel

Posted by: Rachel at February 23, 2006 10:41 PM

Hi Deb. I just wanted to pop over and say how much I look up to your will power, humour and attitude throughout all of this. you are an inspiration. thinking of you often :)

Posted by: Dawn #2 at February 23, 2006 11:22 PM

Nah, you don't want Taco Cabana, BLECH! I was told the Greek Salads from Cafe Express taste like ass! How about some mashed potatoes with chicken fried chicken and cream gravy? YUM!

Keep kickin ass! You are loved by many =)

Posted by: Erin at February 23, 2006 11:24 PM

Not even lipstick? She's not even wearing a teensy, weensy bit of lipstick???!! OMG, that's just not fair, and you best be getting bodyguards for that girl in a few years! Wowza, what a beauty!! Like her mama...

Posted by: eclectic at February 23, 2006 11:46 PM

Deb -

Long time lurker - 1st time poster. Hang in there; this is going to be okay. We have been protecting my mom from germ "invaders" throughout her BMT and she is now at day 72. You really can do this - I know you can. Tell your family and friends - BLEACH. Use the VIREX if the bleach smell is bothering you. Also use the clorox wipes (in the grocery store) to wipe down anything that you touch (or anything anyone else touches for that matter).

Hang in there Deb - you are doing great!! If you need to vent, just do it - all of these people are here for you - and that ain't nothing!

Posted by: flannery at February 23, 2006 11:53 PM

Came here (again) via Eclectic to send major positive vibes. Uma is one badass mamma jamma, so keep on looking at that photo. And your daughter is stunningly beautiful, so keep on looking at that one, too.

Curious: are you allowed to have swords in the hospital? Because that would be cool.

Be strong. Be solid. Be safe.

Posted by: jenny at February 23, 2006 11:55 PM

Friday:

The word of the day UMA is FOCUS.

I know today is the day "we" get the LOVE JUICE
aka the CHEMO. I saw we....because "this crowd"
is here with you so "WE" are doing this with
YOU.

TODAY IS A BIG DAY-with every drop of that love
juice you get....those bad ass cells are going
to curl up and say ewwww....let me go.....
and come 2/27 when you get STUD MAN aka
SUPER BRO...and his cells....YOU ARE ON THE
ROAD TO SOME SERIOUS UMA ASS KICKING....

NOW THIS CROWD HERE....TODAY I WANT ALL OF US
TO VISUALIZE THE QUEEN OF THE UNIVERSE, QUEEN
OF DELFT....KICKING ASS. THE GOOD OLD POWER
OF POSITIVE THINKING.

AND ME...HELL I am saying NO to SALADS....
I heard they cause premature hair loss,
possible breast shrinkage, the urge to choke
strangers....I read this all the New England
Journal of Medicine....and man oh man if they
say it's so....that's like the BIBLE.....

I will be thinking of you all day long....

It is 545am here...the crack of crack as you
say and I am leaving for work.

I love you kiddo.....You can and you will do
this. Remember you have your buddy Sarah front
row, front seat.....just close your eyes's
and if it get hard....ask her to help ya...
She would help anybody.

Love,
Nikki

Do you know where my car keys are?

Posted by: Nikki at February 24, 2006 04:49 AM

Dear DebUma,

This is the part of the movie where you're lying in the back of the Pussy Wagon, wiggling that big toe for the first time. You'll get through the transplant and have those other piggies wiggling in no time. I know it.

--Amanda

Posted by: amanda at February 24, 2006 07:14 AM

Excellent assignment, dearie!

You DO have tha steely resolve -- and Giggle Bear and Zoe Bear -- you WILL make it through this. :)

Hugs to you!

Posted by: CircusKelli at February 24, 2006 08:12 AM

Thinking of you this morning...not quite the "crack of crack" but close! MWAH!

Posted by: Traci at February 24, 2006 08:16 AM

A little bird told me I should add this for
today's visual.

Love, exciting and new
Come Aboard. We're expecting you.
Love, life's sweetest reward.
Let it flow, it floats back to you.

Love Boat soon will be making another run
The Love Boat promises something for everyone
Set a course for adventure,
Your mind on a new romance.

Love won't hurt anymore
It's an open smile on a friendly shore.
Yes LOOOOOOOOOOOOOOOVE! It's LOOOOOOOOOOOOOOOVE! (hey-ah!)

Love Boat soon will be making another run
The Love Boat promises something for everyone
Set a course for adventure,
Your mind on a new romance.

Love won't hurt anymore
It's an open smile on a friendly shore.
It's LOOOOOOOOOOOOOOOVE! It's LOOOOOOOOOOOOOOOVE! It's
LOOOOOOOOOOOVE!
It's the Love Boat-ah! It's the Love Boat-ah!

I really must get back to work. I will check
in with you later-when I cut out of here early
today. Picking up one of the crazy sister's,
Lisabeth at the airport.


xoxoxo
Nikki

Posted by: Nikki at February 24, 2006 09:14 AM

Just checking in to see how you're doing. I also have a question: Can I send you something via the address in the previous post besides a check? I have something for you, and I did a donation via paypal.

Let me know. Email is: lawbrat@lawbrat.com

Love and hugs to you, you are always in my prayers and thoughts.

Posted by: Dawn at February 24, 2006 09:15 AM

Yo Dawn-
Yeah, stuff sent to that address will get to the Debu. Because it is an office address, we felt more comfortable that things wouldn't get lost.

As an aside, I got so much junk mail over Christmas, the back of my mailbox fell off. I haven't fix it yet. Fortunately, there is shrubbery behind the mailbox, so nine times outta ten, the mail stays in.

Anyhow, bigtime thanks!

Posted by: Sis#1 at February 24, 2006 09:42 AM

That little doll is gonna break some hearts one day! What I wouldn't give for those lips ~

Posted by: Tammie at February 24, 2006 10:07 AM

First of all: Cafe Express' salads are filled with TONS AND TONS of calories--I calculated them when I was preggers with Lauren cause I was doing the craving thing for them at that time. And besides, after I realized that I could eat lettuce and not die, I went and ate one and they do taste like yuck--actually, they're tasteless...don't taste good at all--there's no taste, just really bland. Taco Cabana is just flour and water, with some Elmer's Glue thrown in to hold it together. Really yucky.

Now, beef stew with bisquits (is that spelled right?) or french toast with maple syrup....yum again!

I'm trying to be with you mentally as I'm around with too many petri-dishes right now. Toddlers on Wednesday and elementary size every day (who happens to be home today with the sniffles--I think she just wanted to chill in front the the Game Cube!) so I'm staying clear. The thought did cross my mind to put together a care package (including that sign) and I'm glad someone asked that question.

I want to be walking next to you and keeping you company and kickin' other's a's cause they're leaving you out in the hallway (but we wouldn't really mind cause we're hanging and chatting and laughing at the goobers as they walk on by) and sending them away when they come into your room uninvited. You wouldn't have your mind on anything except what we were laughing about and it would be like we were in the pool all those years ago when Zoe was just an itty baby. Course, I think if I was hanging out with you I wouldn't be making any friends, cause they would really hate my loud mouth getting onto them for being so insensitive. I did that when my sister was having my niece and the nurse asked to borrow my camera to take a picture--I wasn't surprised when she returned the camera and told me she "accidentally" dropped it and it broke--sorry! I guess that made her feel better, it'll be on her list when she reaches the pearly gates!

How's that room with the three windows? Did you get unpacked and find your goodies?


Posted by: Denise at February 24, 2006 10:38 AM

I don't mean to k'vetsh too much, but could someone post a Yiddish pronunciation guide?

I wouldn't want to sound like a dumkop. I mean someday I may go to Yidland and I would like to speak with the natives in their own tongue.

Maybe when Debby is all well, we (Deb, me and all her Yiddish Meshpucha) could go to Yidland and speak Yiddish.

Oi, Vai!

Shalom,
Shvester di #2

Posted by: sis #2 at February 24, 2006 11:15 AM

"Love Juice" in, "Hate Cells" out. Yep, just like that! You're that much closer to healthy and strong now. Go Deb-Uma, Go! Fight, girly!

Posted by: eclectic at February 24, 2006 11:59 AM

Ok now I am REALLY getting ANNOYED by that hospital staff!!! Tell them that if they don't start respecting your feelings then I am going to come all the way from South Carolina and open a BIG OLD CAN OF WHOOP ASS on them!!! I mean it Deb. You can request NOT to have your vitals taken at 4:00am; and if your midnight vitals were normal then THERE IS NO REASON FOR YOU TO WAKE UP AT 4AM FOR THE NEXT SET OF VITALS. Tell them to come in when the lab comes and take your vitals then!!! Have them post this on your chart, careplan, kardex, door or whatever the hell they follow and ENFORCE it. GO WOOKIE on them if necessary. You can also demand that they not wake you up early and ONLY if the transport guy is in the room with the nurse shall you be wakened to go on your journey! And if they put you in the hall ever again, just go crazy and start singing or shouting at the top of your lungs to be moved out of the hall!! If you shout loud enough they will hear you! Demand to speak with the manager of the radiation dept and report this to your patient advocate. I mean it Deb! There is NO reason that a patient should have to wait in the hallway!!!!! Demand to speak to the CEO for crying out loud.

OK I'm sorry for being so angry but I can't help it. Being in the profession I know the other side and I hate to have any of MY patients go through this. As for the infection worries. What ever you do make sure that EVERYONE and I mean EVERYONE who enters your room wears a mask and gloves!! I dont care how long they will be in the room and if they are family, visitors, staff etc. This is an extremely important rule. If your visitors really care about you then they wont mind wearing the mask or gloves anyway. I also like the idea of the clorox wipes. wipe down everything from the bedrails, doorknob, call bell and telephone if used by visitors.

Ok OK OK I am stepping down off my soap box now.
DEEP BREATH now sssmmmmmhhhhaaaa! I feel better now.
I also have it on the most reliable resource that the Cafe Express and the Taco Cabana did not, I repeat did not pass their last health inspection. I have heard that all the food on their menus have been giving EVERY PATRON a horrible case of the Green Apple Two Step!! with a side of the Screamin MiMis. I am serious Deb. Stick with steak and mashed potatoes.

Hang in there Deb the love juice and the stud cells are a walk in the park for the Queen of Delft.

Zoe is truly a beautiful gift from God.

Love ya girl,
Cami

Posted by: cami at February 24, 2006 01:39 PM

My first priority is to look as hot yet frightening with a sword in my hand as does Uma.
My next priority is to not accidentally swipe anyone with the sword.
My priority after that is flowers and notes of apology to all the people I unintentionally swiped with the sword.

Dangit, no wonder Mom wouldn't give me more than a butter knife growing up...

Posted by: Bucky Four-Eyes at February 24, 2006 02:07 PM

Hey, in case I forget to tell you, I visited with Ashley and her fever is gone. She is hoping to get out of the hospital at the beginning of next week.

Yay!

Posted by: Sis#1 at February 24, 2006 03:28 PM

Hey Deb

I just want you to know that I am still thinking about you all the time.

I don't know what to say, I don't know what I to do. But You are always in my thoughts Deb.

Please get better.

xx

Sam

Posted by: Sam (Burns1) at February 24, 2006 04:21 PM

I am in the "big city" with some of my kin folk
as in my sister's. I YANKED my daughter Grace
out of school and left the boy's with their Father.
Grace would have been throwing a big fit if she
didn't get to come. She's the same age as Zoe I
believe, and she loves my sister's. I am sure
it has nothing to do with the fact they spoil
her.

I see you are getting the "love juice" I can
see the bag on your tower. Do you put something
on top of your IV pole? We should send you
our beautiful Chemo Barbie we fixed up for
Sarah. Actually Shoshie was the brains behind
this fashion doll.

Today is a big day and a difficult day. Uma
is in the bag along with the chemo. Uma can
do things like that you know. She has magical
powers. Our family is going to the temple
tonight all of us for you-24 of us should
help I would hope.

Tell Sis # 2 we will meet in Classroom # 2
and go over the the sounds of the Yiddish
words. Get your passport ready for when we all
go to "Yidland". The real teacher I hope will
be taking over very soon-you can call her
"Sidland" in lieu of Shoshie.

Love,
Lisabeth

Posted by: Lisabeth at February 24, 2006 04:55 PM

That child is GORGEOUS!!! Whoa!

Posted by: dashababy at February 25, 2006 11:06 AM