February 28, 2006

Brat Tuesday

Did you know you can throw up in technicolor?

Learn something new every day.

From what I remember post drool/sleep haze this morning:

RING RING

"May I speak to Debby?"

"This is she."

"I'm calling from Patient Services. We'd like to send a Muslim cleric to your room."

"Um. I'm not a Muslim."

"Well that's ok. We didn't think you'd mind."

hahahahahaha

Thus went the call today from Shoshie. Nothing like laughing your ass off with a mouth full of mouth sores.

Yes. I finally got them. And it's the weirdest sensation ever. But at least I don't have syphillis (which is what my Yiddish Yoda Master reminded me of)

Mouth sores. They so suck it. It's like when you bite the inside of your cheek, except it's all over your mouth. My lips are swollen and numb. I'm still fighting the sensation and am trying to continue eating. I know that if I stop eating they will give me stuff in my IV, but worse, I will have all of these harsh meds on a pretty empty stomach.

This morning started off a little crazy. They woke me at 4 for vitals. They then came in at 5am to draw blood. I was wide awake from 4 so I just stayed up. I started to feel really bad and checked my blood sugar. It was 58 (normal is between 70 - 110). I asked them to bring me some juice. I also ate two muffins. They are so fantastic.

But basically they are giving me too much insulin and it's making my blood sugar drop too low - to the point where I'm getting the shakes and can't function. Sis #1 and I had a talk with the Nurse Manager tonight and my doctor will be addressing it tomorrow. I am thinking that my endocrin doc is going to get the boot.

Sis #2 and my mom moved all my stuff to my new apartment today. It's only going to be a temporary casa debu, but will make it much easier after I get out. I'll be having about 100 days of doctor's appointments. It will be nice to live so close to the hospital as it's about five minutes away from here. I am so grateful for all of their help as it was a pretty monumental task and a lot of work.

Sis #1 saved me today with more gifts. For lunch she brought the gift of Wedding Soup and fresh bread. It totally hit the spot and didn't make me throw up. She also brought a super special surprise and posted a bunch of my nephew's drawings on my wall. They are actually so beautiful and each one had a story with it. He is such an amazing little kid; he learned to read before he was two. I used to babysit them nearly every week and I just miss them so much. They are just like my kids too.

I love this picture. It's Saturn with all these moons around it. And they are connected. There is a gadget machine (lots of those in the drawings) below it.

gadget machine.jpg

Well, I'm off for a walk. I need to keep moving as it is a reminder that all of these horrible side effects are just part of what I have to do to get well. I'm healing. It's no fun now, but eventually I will be writing about my adventures with Zoe again.

I have to remind myself of that when it gets hard and I'm feeling miserable. It's really difficult at times, as I'm really hurting now, but my room is full of reminders: pictures of Zoe everywhere, my new wall of drawings, my Uma picture, my autographed Texans hat, my Monkey Boy's Team in Training jersey, and my computer, which is my link to the world.

I can do this. I got some Mardi Gras spirit in me.

Your assignment for today: Sis #1 said I should open the floor for questions. Serious ones, funny ones, weird ones. If you want to keep it a bit more anonymous, you are welcome to send them to me via email at:

debuma@earthlink.net

(I am having temporary emailus interruptus on my old email account - so I now have the above email account)

Posted by debutaunt at February 28, 2006 04:18 PM
Comments

I threw up in technicolor once...when I was pregnant and just after eating a bowl of Trix cereal.

Posted by: Karan at February 28, 2006 08:41 PM

Throwing up in Technicolor is something I never would have considered.

Blessings to you!

Posted by: Sometimes Saintly Nick at February 28, 2006 09:05 PM

OK, I am following through on the assignment as I often get a lot of questions about what you are going through, and I know the answers to some and maybe not others. Assume peeps know nothing about the stuff.

1. Describe what is involved with the actual transplant day. (I keep getting people asking about "the operation." not). Oh and the smell. (Tho of course, all I could smell was the inside of the mask).

2. What is the question you get asked the most often?

3. What is some things involved with the transplant stuff that would surprise people? What surprised you, if anything?

Posted by: Sis#1 at February 28, 2006 09:27 PM

I just love the word 'peeps'. Its a fun word.

I got a question. If you can answer it, I will bow to you. Nevermind the one I had in mind. I've been in the class for 9 weeks now and cant even figure out the damn question!!

What is your favorite color?

Yea, I know. Not a difficult question, but there are reasons for it.

::Wondering if it may be pink::

Going back to figuring out my question for school. Oh joy.

Posted by: Dawn at February 28, 2006 09:38 PM

Oh Yes questions.

1. What's your favorite color
2. How many different medicines do you take each
day.
3. Of those how many go through your oh so cool
triple CVS line (that my friends is the device
implanted right under her collar bone where
she received her stem cells)
4. Do you hate being weighed every day
5. Could you get Sis #1 to do a dance video
for us.
6. Did you unpack yet.

That is all for the moment. I ask lot's of
questions all the time :) Part of that is my
nature, part of that stems from my job.

Technicolor vomit-what a way to celebrate Mardi
Gras.

A big round of applause for Sis #1 "chatting with
them" regarading the insulin and Deb's blood sugar
levels. Cheers for Mom, and Sis # 2 for handling
the big move. EWWWWW I hate moving.

Nikki

Posted by: nikki at February 28, 2006 09:42 PM

Do suckers help for the mouth sores???

I would say my big question is if you have met any truly bitchy/catty/bad/ people while there, or are most of them nice??

Also, is there anything that I can bring you?

Posted by: Sarcastic Journalist at February 28, 2006 09:42 PM

Fruity pebbles make for good technicolor vomit experiences...

Also..nicely mixed fruit salad...

hmmm...

maybe pizza with the works :)

Deb...Thinking of you fondly my dear :)


Bradley
The Egel Nest

Posted by: Bradley Egel at February 28, 2006 09:53 PM

I just discovered you site a couple of weeks ago and since have reread all of you entries from when you first were diagnosis. You are such a brave woman and it is heartbreaking to read all that you are going through.
I have a very personal question. Feel free to ignor me.
How are you able to to handle the financial burden that you must be under. I know that you have had some wonderful people make donations, but the cost of this treatment must be astronomical.
Wishing you all the joy that your future will bring

Posted by: Catsy at February 28, 2006 10:07 PM

Oh! Oh! Oh! (does anyone remember horshack on welcome back kotter?!!!) I've got a question!

Goofy or Pluto??!!!

At least giggle before the next episode of technicolor hurling ok?

Posted by: Traci at February 28, 2006 10:08 PM

I've thrown up in technicolor, but not in black and white.
Questions, eh? Let me try a few:
-What is your favorite song? By whom?
-If you could create a new species of animal, using any parts of any animal, what would you create and what would it look like?
-Can bunnies physically hop backwards?

That's all I can think of for now.
Thinking of you,
-M_D

Posted by: M_D at February 28, 2006 10:12 PM

I may be back with a question. First, I gotta say, thanks for the laugh. I read only the first part of the post, and I went all indignant, calling to my husband, "Would you listen to this? They're calling this Catholic woman, offering her a Muslim cleric the day after her stem-cell transplant . . . " I was going OFF. I LOVE Shoshie. This is hysterical. God bless her, and you, and thank God for a sense of humor.

Posted by: Susie at February 28, 2006 10:24 PM

Technicolor hurling: all I could picture was the King Cake from Mardi Gras!

Gotta tell you I was surprised at the simplicity of the actual donating and recieving of the stem cells (not the whole week process of getting your body ready to receive them....that sucks!) but the actual "in-take" of the cells. And I'm not the only one, MDH and several of my friends have said they thought it would be a horrendously painful procedure.....it's just like giving blood, right?

Had lunch with my mother-in-law today. That is always such a treat! You were brought up and she is so wishing the very best for you.

We love you, Debu,

Posted by: Denise at February 28, 2006 10:26 PM

Debu, I would like to answer one of these questions:

"How are you able to to handle the financial burden that you must be under. I know that you have had some wonderful people make donations, but the cost of this treatment must be astronomical."

I am the Chief Financial Officer (CFO) of Debuma Kick Cancer's Ass. I do the money thing.

Deb as the CEO does the healing thing 100% and shouldn't think of the money thing one lick because she, as the CEO, needs to be laser beam focused at KICKING CANCER'S ASS and as Queen of the Universe, including the subset of Delft, does not need anything as pedestrian and earthly as "financial burdens" to be thinking one bit about. (Of course, if a real CEO had that philosophy, they might be soon sharing a cell with Ken Lay. Or maybe that is Ken Lay's defense?? Hmmm.)

So, the brief summary is...drumroll....she has, relatively speaking, kind medical insurance. They haven't jacked with us too hard.

Otherwise I would either give them my mean look or my pouty lip of death. Or maybe both, but not at the same time. I am sure that when there is a final accounting of everything, I will have to whip out both the mean look and pouty lip of death.

The other expenses stuff isn't cool. (As an aside, apartment moving companies can all go to hades and rot for all I care. Obvious public service announcement, of course, similar to saying smoking is bad for you.)

So, if you are looking for opportunities to make donations that really make a profound difference to an individual person's situation, the Debufund is the bestest one to donate to, in this CFO's humble opinion and always brings a smile to my face. (Especially when I see the name of a Girl Scout buddy I haven't seen since 9th grade! That is so cool.)

No administrative costs! No waste! 100% goes to helping the Debu KICK CANCER'S ASS. Genius mission statement, isn't it?

So as the CFO, I just ask everyone to help anyway they can, even if all you are able to do is spread the word about another human being:

http://www.debutaunt.com/archives/000847.php

And ultimately, like all things, it is best not to think of it all at once, but to take things just a day at a time. So you don't end up wasting energy of stuff that may not happen. Well that, and it also stops your head from exploding, as blowed up heads is a poor fashion statement. See e.g.:

http://www.imdb.com/title/tt0081455/

Posted by: Sis#1 at February 28, 2006 11:01 PM

In school, we used to call it "the technicolor yawn." Sorry you experienced it. But so glad for wedding soup and bread, and walking, and new endocrine monitoring!!

My question: Do you read to Zoe over the phone or does she read to you?

Posted by: eclectic at February 28, 2006 11:18 PM

Mom and I are DONE!!!!!!!!!!! (Well, at least on this end.) I'm really glad that I spent quite a bit of my childhood playing Tetris because that skill came in handy packing the van.

OBSERVATION OF THE DAY: You know Zoe is Debby's daughter when she jumps into the car afterschool and the first thing she enthusiastically says is "Somebody almost made me pee in my pants."

And this was her story (and probably not told as well, but I'll try my best.) The girls were all screaming at the boys "No boys allowed. No boys allowed." But then this boy was pushing her down the slide and she was laughing so hard, it nearly made her pee her pants. "He almost made me pee in my pants."

Two reasons why this makes Zoe Debby's daughter (other than she is) 1) Deb doesn't mind discussing bodily fluids (me neither - so I'm not knocking anyone here) and 2) when Deb was little sis #1 and I could always make her piss her pants. She was very ticklish as a child.

I don't know why it was so funny to make someone pee in their pants, but it's probably the same thing that makes shooting snot out your nose when you yells "Yatzee" funny too. Or saying that your going to eat a "fecal" sandwich. Potty humor.

Life is good.

Good night ya'll.

p.s.- The #2 DOES NOT stand for poop.

Posted by: sis #2 at March 1, 2006 12:09 AM

When I go to the hospital I am always famous for running around with my gown loose.

My sister gets so embarassed I am mooning everybody but I figure it's the hospital for God's sake, you've got to expect a little skin.

Feel better, hug everyone.

Posted by: Gary Denton at March 1, 2006 02:18 AM

What is wedding soup?

If your mouth sores were animals what kind of animals would they be? And what would you do to/with them?

Posted by: martha at March 1, 2006 06:40 AM

Sis #2, that was a great comment! I tend to see a pattern with people that are grossed out by talk of bodily fluids- they either:

dont have kids
are not around kids
uptight

That is just my own observation. If anyone is grossed out by bodily fluids and does not meet any of these 3 categories, its not a slam on you.
But, after you've been peed on many times, have dug poop out of a baby's butt, you just become immune.

Hope your morning is going well Deb, and there is no more technicolor vomiting.

Posted by: Dawn at March 1, 2006 07:07 AM

Do they let you wear shoes on your walks?

If I could manage only a few short walks each day, then I would be tempted to change into a different pair of shoes each time I passed my room just to see if anybody noticed and/or commented. Or I would make my husband smuggle in my highest, fanciest sandals and if anyone asked why I was wearing them, then I'd reply in my best 'We are not amused voice' that I was on my way to have the hem of my "gown" altered.

Are you visualizing your Bro's cells moving into their new place and expanding, dividing and growing to fill in the empty spaces in the same way that you are visualizing unpacking your stuff when you get to your new apartment?


Posted by: AMG at March 1, 2006 07:45 AM

I was going to ask that old standard, "What was your most embarrassing moment?" But you've got so many siblings posting here that the question is practically moot. (WOOT! I just used the word "moot"!)

So, here's a strange one for you (but it kind of follows on from the technicolour business, in a weird kind of way): When you're at home and doing your own cleaning, what brand of toilet cleaner do you use?

Posted by: Philosophical Karen at March 1, 2006 07:48 AM

Good Morning Debuma,

Grace my daughter has a question (6) she wants
to know if like bubble gum? She is watching me
type this question. I have other questions but
yes we can't ask them, since little eyes can read.

Oh I can ask this question if Shoshie was for sale
and the price was a dollar would you buy her?

Here's to no more technicolor hurling.

Love Grace and Lisabeth

Posted by: Lisabeth at March 1, 2006 07:48 AM

Hugs to you DebUma and still more prayers for your continued healing.

I'm looking forward to the day when this will all be a memory for you.

Posted by: CircusKelli at March 1, 2006 08:01 AM

AMG's comment is cracking me up!! That was great! Gown altered!

I have to go to class :-( Yuck. I wish I could stay and visit more, but apparently you're expected to go to class or you get kicked out of said class after missing 2 classes. Yes, i've missed 2 already. I will leave you with this:

My youngest son is 7, his name is Hunter. Adorable little boy. We have a microwave that has a 'dial' to turn for how long you want something to cook for. He asked a few days ago if it was the 'old fashion type' of microwave.
Either:
1. I'm very old
2. It is old fashioned
3. Kids see the world entirely different than adults do

I'm choosing 3. I remember when microwaves came out! I was older than him! Old fashioned my butt!

Posted by: Dawn at March 1, 2006 08:17 AM

my only question is: can shoshie come and tutor me? i've joined jdate in search of the perfect mensch (yes, i am episcopalian) and i need some good yiddish to wow them. if i find someone, you can be my maid of honor and zoe can be the flower girl. ;)

hang in there deb. xo

Posted by: kristin at March 1, 2006 08:55 AM

What's the first Deb/Zoe outing going to be when you get well?

Please omit any references to anything that comes out of any body part, particularly things that have numbers.

Posted by: D at March 1, 2006 09:10 AM

Okay, 2 questions.

So...this guy, the Muslim cleric...is he a single young fellow?

I kid.

How did you know you were sick? I mean what was the symptom that caused you to go to the doctor?

I ask because a guy in the office here was diagnosed with a different kind of leukemia. He said he felt a knot on his neck and thought it was a routine infection but since he had been traveling to some weird countries for work he didn't want to take any chances on it being Ebola so he went to the see the doctor.

Anyway, you remain in my prayers...keep those recipes coming, too.

Posted by: Patrick at March 1, 2006 09:29 AM

Ouchie. Sorry about the mouth sores, but the Yiddish Yahoo is right. BIT WHERE IS SHE??? That's my query.

Posted by: Kami at March 1, 2006 09:32 AM

can you eat ice cream? or will you be able to soon? if so, there is something i'd love to send you!

Posted by: sarah at March 1, 2006 09:48 AM

Sorry about the technicolor :-( Hope it was an isolated incident!
My question is what is your favorite perfume?
I'm betting its something light and fun - like you Debuma.
Still praying and sending you good vibes daily . . .

Posted by: Lisa O at March 1, 2006 10:09 AM

Technicolored vomit!!! WOW!! What a WOMAN!!!

1. What is wedding soup?

2. Tom and Jerry or Tweety and Sylvester?

My sister in law and I just had this discussion yesterday and I would like to get your Royal Opinnion on the matter.

Cami

Posted by: Cami at March 1, 2006 10:17 AM

My new question: Did you sleep well and are you having a good morning?? Hugs!

Posted by: eclectic at March 1, 2006 10:32 AM

When you can eat anything you want again, what will it be?
When you're totally better, would you consider having a giant party for your big internets family?
This is awful, but I'm curious: Does all the hair fall out? Like, arm hair, leg hair, etc?
What's Monkey Boy like? Where did you meet him?
What celebrity do you have a crush on?

Posted by: Angie at March 1, 2006 10:43 AM

I just want to let you know, I've been reading your site for some time now, and you're a truly inspiring person. That said, here are my questions for you:

What is involved in donating stem cells?
Can you be entered in a registry, like the bone marrow doner registry?
What are the qualifications?
What is Zoe's favorite color?

I say a prayer for you every day. God bless and speed your recovery.

Posted by: Jessica at March 1, 2006 11:49 AM

You are amazing, that's all I have to say!

Posted by: jlybn123 at March 1, 2006 12:32 PM

Hiya, Sorry to hear that your stomach is playing up and mouth ulcers really suck, I am nursing one now, I can't imagine how it muust feel with several on the go at once. I think the last time I had a technicolour yawn was the morning after a good night out dancing on tables in several gay clubs in New York. I will never mix tequila and whiskey again ;)

Posted by: lynne at March 1, 2006 01:16 PM