I'm still sad but at least not sobbing. And I'm done writing about that. It's my hate to have, but I just don't have it. And I never will. Regardless of the heartbreak, I have to think back on the joy, support, much cherished love and laughter he brought me when I really needed someone. So I will focus on that. And that's all I'm going to focus on there.
I have a job to do.
Thank you for your love and support.
Today is day five of exhaustion. I love being out of the hospital. I love sleeping in my bed. That's the most amazing thing. I have a king size bed. It's nice to roll around and lounge without the iv tubes and pole.
But I have had the worst stomach issues of my entire life. The first three nights I spent in the can with the dia of the rear. There's nothing like falling asleep on the toilet. So then they made me take immodium because I got seriously dehydrated, so now instead feel like I'm backed up like the Katy Freeway. Constant stomach pain.
I wake up with the most breathtaking pain in my stomach - so I start the day with some painkillers. Then comes breakfast with 17 different pills and two shots. Gagging these pills is horrible.
So then comes the doctors appointments. Except I have now lost 37 lbs (7 lbs overnight yesterday), and I can barely walk. Mom's been pushing me in a wheelchair. I go get my blood drawn, then go to the BMT center to get fluids. Hours of fluids. Today I had seven hours of magnesium and fluids because my electrolytes are off. Which means I will spend all night peeing. I have dreams of peeing. I wake up and thing "Mrs. Haversham needs to go pee." This is my brain keeping myself from peeing my pants and doing the pee pee dance.
Who the hell is Mrs. Haversham?
I am really having a hard time dealing with this treatment. Lots of walking. Lots of stomach pain. Lots of laying in bed. I start physical therapy next week to try to replace the muscle loss.
I got a bone marrow biopsy today. I was supposed to get sedated, but like the loser I am, I had one sip of diet cranberry juice this morning, so they wouldn't do it. So I went in, like I usually do, and just sucked it up and got stuck in the hip. I'm still sore. I will be for at least a week. And it always makes me cry. I hate them, but this one will show if I'm in remission and how much my brother's cells have grafted.
I can do this. But I'm tired as hell.
Again, thanks for the comments. I'll let the readers vote on the band name.
Today your assignment is to be grateful to be alive. I have been through hell this past month, but I'm still here. So enjoy today. Really enjoy today. I may feel like crap, but I'm going to try to smile a few times.
thank you, Deb! keep kicking ass.
Posted by: Miah at March 29, 2006 10:26 PMI was so excited to be the first comment that I was typing like a mad woman and the above blurt was all I could get out. (teeheehee) Deb, God bless you with rest. You are such an inspiration.
Posted by: Miah at March 29, 2006 10:31 PMDear Deb,
I am writing to you as I would in an email. I want
the world to know a few things.
Yes I cried when I just read what you wrote on our
site. And unlike Shoshie I had no wine with dinner.
I know because of Sarah and being a doctor more
info about your disease then the average person.
Most people rightfully so have no idea how
difficult this process is for someone. Both
physcially and mentally.
What you been through is pure hell. The fact
that you can write on this blog is a miracle.
You are destined to be procalimed "cancer-free".
Your mindset is perfect, your attitude is beyond
inspiring. Your courage is an inspiration to everyone. Your heart could not be any bigger.
Your ability to connect with all of us is
truly amazing. You have blessed all of us
by showing the world the meaning of love and
courage.
I am humbled and honored to call you my friend.
While I will be very far away logistically. I
will know how you are doing. Once I get situated
I will find a way to be in touch. The "girls"
will keep me in the loop.
You have a very special place in my heart and
you will be going with me on my trip. See once
someone is in my heart, they are always with me.
My assignment for you. Take care of you (I know
you will). Remember Sarah is your guardian angel.
And remember I will always have you in my heart.
Love,
Nikki
I will be back here before I leave.
Posted by: SWLF at March 29, 2006 10:36 PMi am so glad you updated us on your "stuff". ;)
keep your head held high, you are a tough-as-nails-beeeyaaatch. you can kick this.
best,
sarcomical
Aw, Deb. YOU ROCK! I swear, you may not feel like much of an ass-kicker but you're stronger, more diligent, and more inspirational than just about everyone I know ('cept maybe Cody). And somewhere along the way you also toss in that 'reaching out to others' that takes some of your energy but gives us a chance to hone in on ways to support you. Way to go.
Mrs. Haversham is probably your Inner-Yiddish-Yenta now that Shoshie has awakened her by teaching you Yiddish.
Posted by: Bren=Cody'sMom at March 29, 2006 11:59 PMhave you been reading Dickens? *L* Mrs Haversham is a character from Great Expectations
Deb...stands and applauds your courage, your style, your strength, your determination and most of all...you, just you Deb...awesome, wonderful, beautiful, inspiring, loving and loveable Deb
oh to hell with applause...hands out the pom poms to your huge cheering team
rah rah rah!!!!!
Posted by: Fiona at March 30, 2006 12:08 AMHugs.
I'm glad to see you back.
xxx
snit
Oh Queen,
So nice to see you back!! HOpe your tummy gives you a break, and that your biopsy shows all good things. Gaaaah! I love that you're back!!!
~The Duchess
Come on back!
I have fulfilled your assignment. Every day I wake up with my kitty cat in bed with me is a good one, even though he takes up all the room. Your assignment from me is to maybe try a big fat spoonful of peanut butter every four hours so as not to lose more weight. That stuff will keep you going, I swear. Protein and fat, all oiled into one.
Be well.
Posted by: Ritterskoop at March 30, 2006 01:15 AMCome on back!
I have fulfilled your assignment. Every day I wake up with my kitty cat in bed with me is a good one, even though he takes up all the room. Your assignment from me is to maybe try a big fat spoonful of peanut butter every four hours so as not to lose more weight. That stuff will keep you going, I swear. Protein and fat, all oiled into one.
Be well.
Posted by: Ritterskoop at March 30, 2006 01:15 AMCome on back!
I have fulfilled your assignment. Every day I wake up with my kitty cat in bed with me is a good one, even though he takes up all the room. Your assignment from me is to maybe try a big fat spoonful of peanut butter every four hours so as not to lose more weight. That stuff will keep you going, I swear. Protein and fat, all oiled into one.
Be well.
Posted by: Ritterskoop at March 30, 2006 01:15 AMAck.
Many sorries for the triple post. I was outsmarted.
Delete at will.
Posted by: ritterskoop at March 30, 2006 01:18 AMI'm so happy to hear from you today...
I kept checking for you -
Keep doing what you are doing.
Each day, each hour brings you steps closer to winning, and I know you are going to win.
Did you get a choice of which hip for the shot? At times like this, it's good to practice any sort of decision-making at your disposal.
Prayers for your successful recovery.
Posted by: Mark at March 30, 2006 05:15 AMHail Hail the Queen is back.
I am so sorry you had to have have the biopsy with out sedation OUCH. you are so brave. I have never had one but i've seen them done so many times and that is one procedure i would not want to have done with out sedation, but you do what you have to do.
Your and your brothers #'s are going to be great.
Take care of your self, enjoy your big king size bed and I hope the bell bell gets better.
peace and prayers
nancy
Yay! Hi DebUma! ;)
Bye, bye Nikki :( Have a good trip, and stay safe!
xoxo
Posted by: clandestine at March 30, 2006 06:25 AMTell Mrs. Haversham you'd like some tea and crumpets after you've finished peeing!
Posted by: Bucky Four-Eyes at March 30, 2006 06:50 AMBwahahahahaha Mrs. Haversham she's not JEWISH.
But heck I think this is so good. You can make
her do all the yick stuff for you. You can
pretend she has to take all that medicine. I like
what Bucky said "bring you tea and crumpets".
Now you are going to need an English accent and
this all must be intertwined with you being the
Queen.
I can't believe you were harpooned without the drugs. HOLY DRECK-that hurts just thinking about
that-Of course I have never been harpooned I just
saw it once, and about plotzed. (exploded)
I need to remember that I must explain the Yiddish
words I throw out here. But Queen I think you
recall all the good ones.
You made Nikki cry when she read what you wrote.
See if you can get her to stay that would be
awesome.
We are all praying, kvetching, OY VEY, everything
that your harpoon test comes back good.
Have some chicken noodle soup-the elixir to the
GODS at least for us Jewish folks.
I will put a Yiddish hex on that stomach pain
yuckaroo on stomach pain. Blech.
Good thing you wrote something. I about broke
my finger scrooling through the bajillion
comments to get to the end.
Girlfriend I hope you have a much better day
today. And tell Mrs. Haversham to get with the
program and to make you better already. If
nothing else make her curtsy when she is around.
Love,
Shoshie
The Hyper Yiddish Yoda Master to the Queen
I'm so glad to see you back! Hopefully things are getting a little better. Urgh, I wish we could all share your symptoms a little so you felt less like crap. Blargh.
Welcome back!
Posted by: Angie at March 30, 2006 08:11 AMYou're doing this! And I'm so happy (and in awe) that you're doing it from home. You're awesome. And so is Mrs. Haversham-LOL-pass those drugs over here =). I hope your belly issues ease up soon. Keeping you in my thoughts and prayers for strength of body and spirit.
Posted by: Kris Herbst at March 30, 2006 08:19 AMDear Deb,
I love you and your persistance.
Hugs,
Kelli
Posted by: CircusKelli at March 30, 2006 08:23 AMHeya, Deb!
So glad that you are home and in your own bed; that is wonderful news!!! Once we get this stomach thing licked (not literally, Ewwww!) you'll be sleeping so well and getting all of your ass-kicking strength back.
You should probably have fittings for your super-heroine costume soon!
We know you can do this. YOU CAN DO THIS!
Cheers!!!
Sally
Im glad you are back. I missed you. *hugs*
Posted by: Fellow Eskimo at March 30, 2006 08:37 AMI'm so glad you're sprung, moving on despite despair and moving on. Regarding the imodium issue - another suggestion - pomegranate juice and 7up or tonic water or sprite or anything - it's a natural runs stopper. It works for us.
keep it up Deb. Uma's got nuthin on you.
linda
Welcome home. Relax, and consider the homework done.
Posted by: hamel at March 30, 2006 09:30 AMAfter I commented last night that I wanted you back, I couldn't sleep thinking of how selfish I was, asking you to keep posting, when you had such little strength. This morning, I was thrilled and humbled to see you back on line. You are wonderful and I hope with all my heart that the stomach thing clears up soon. You deserve a good nights sleep.
So the queen has a chariot, albeit, a wheelchair. Someday, you will exchange it for a wonderful coach . . . I am thinking Mercedes Benz convertible. Now isn't that a great thought to help you heal.
Posted by: Maria at March 30, 2006 09:35 AMDebuma - I am so happy that you are back and still fighting (and winning!) and kicking cancer's ass. As so many have said you ARE a true inspiration and I cannot tell you how often I think of you throughout my day when I am stressing over some dumb trivial thing.
I'm praying that you are in remission and that your tummy troubles are over soon. As far as the heartache - I won't mention it again but I hope you are feeling less of it everyday.
Big hugs
DEB! There you are! i have nothing to add but (((hugs))) and hoping the tummy stuff resolves. xoxoxo
Posted by: kristin at March 30, 2006 10:03 AMYou cannot know how my heart filled to see you posted. Just to know that your doing this, keeping on, fighting the good fight.
Updates by Sis are awesome, and if you dont have the energy to post- dont. You come first.
Love to you my Quees!
Dawn
Posted by: lawbrat at March 30, 2006 10:12 AMYou have no idea how happy I was to see your post. I've been checking in each day hoping you've written.
As far as pee dreams go, I have them all the time. Usually, in my dreams, I'm trying to find a bathroom, but the bathroom is either really, really gross, or it's in use, or the commode is broken, etc. I'm concerned one day I'll actually find one in my dream that I can use. I don't even want to think about that.
Love always,
Trish
I am so happy to see you back. Keep kickin' it, girl. I'm sending good karma your way!!
Posted by: Lisa at March 30, 2006 10:47 AMfar and away the best blog entry of the day! so glad you're back and posting so we can love and support you through this difficult time.
and for the record, i have NO knowledge of any religious icons in my stretch marks. to be honest, i simply can't look at them long enough to discover something like that, but perhaps i should. i could become some kind of living shrine, traveling the country and collecting $ for the debufund. maybe we should all have a closer look at our stretch marks. ;)
xo
Posted by: moxiemomma at March 30, 2006 12:06 PMOh Deb, I am so happy to see you this morning. I read what you wrote over at the sisters sight and it got me crying so I can only imagine how Nikki felt upon reading it. I am so very proud of you. Your endurance and strength and humor along with your beautiful spirit have inspired me. Really. I hope your stomach feels better soon my dear. I canNOT believe you had the biopsy unsedated! YIKES for sure. What a brave soul you are. Do you know the definition for courage? It is this: Feeling the fear and doing it anyway. You my dear are courage personified. Thank you for the gift of sharing your journey. Peace.
Posted by: Traci at March 30, 2006 12:58 PMso glad you're back Deb - I've missed you and you're fighting spirit. Keep strong, and as always I've got you in my thoughts and prayers.
Posted by: CursingMama at March 30, 2006 01:38 PMWelcome home Deb. I'm so glad to see that you are back online. I hate that your stomach is giving you the dickens (ha ha) but I pray that it will pass quickly. Consider my assignment completed. We are taking the kids camping in the backyard this weekend per Jonathan's request. Hey, remember Wyoming??? What a hoot!!!!
Love,
Cami
I'm so glad to see you back, Deb. Somehow I knew you couldn't stay down long. It just doesn't seem to be in your nature.
It's a gorgeous day here, almost T-shirt weather. (Keep in mind we've had snow in the past week, so this is different for us.) I'm definitely enjoying today!
Posted by: Philosophical Karen at March 30, 2006 02:18 PMKeep tough, girl! I'll be going through my own version of this at Duke, probably within the next month. The pain and gut issues will pass!
Laurel
Posted by: laurel at March 30, 2006 02:37 PMPRAISE JESUS YOU ARE BACK!
i will say a prayer for you and your tummy. the diarrhea, she is no fun.
Posted by: pickles at March 30, 2006 03:02 PMI'm so glad you're back to the blog! We're a selfish bunch aren't we? I so hope your pain eases and that you're able to keep something nourishing down.
Think of all your wellwishers as extra mental fuel lying in the background helping to push you through this crud.
You're amazing.
Deb, I'd been away for a bit and was a little dismayed by your previous post. I was very worried about you.
And then I proceeded to read the post's from the previous week. Zoe's missed birthday party, still tough to keep food down, Eric's passing AND your heartbreak/betrayal...all while battling cancer. The fact that you had the composure to post ANYTHING at all is amazing. Utterly and absolutely amazing. I cannot for a moment begin to comprehend just how difficult last week was.
You amaze me in so many ways...including somehow thinking you "disappoint" folks. Don't be silly. It's clear you are made of sterner stuff.
You take care of yourself in the new digs. Enjoy that king size bed. And please know you remain in my prayers.
Posted by: Patrick at March 30, 2006 06:06 PMTake care of you, I am glad you have your mom. The fight you are fighting is big, but you can do it!
Posted by: Nina at March 30, 2006 06:23 PMHello Queen Deb! I just dropped by to say hi this evening and to wish you a restful night. You're always in my thoughts.
Posted by: eclectic at March 30, 2006 06:56 PMDear Deb,
Am crying because you are back. I woke up this morning praying for you, prayed for you in the shower, and YOU'RE BACK!!! My daughter Gracie, who is 4, prays for Zoe everyday. Suffice it to say, I went through fighting this horrid disease, in Zoe's role...so your struggle is very familiar for me. So glad you're back.