April 27, 2006

MeOuch

Yesterday I walked 2,064 steps. That's a mile. How did you do?

Yeah, like I'm a stud. After my rehab, I could barely walk, and when Mom finally picked me up, I came home, crashed on my bed before my shower and ... well, cried. I couldn't believe how sad I felt. The steroids were playing all heck with my knees yesterday so they were swollen. I wanted a wheelchair in the worst way, but was determined to go at it alone and walk it out. I just don't want to go backwards, you know?

So when I got to rehab, I rode the bike, did the weird "hand bike," did 3 different type of leg squat exercises, a leg extension workout, lat pulldowns, bench press, then biceps and triceps. It was the hardest workout I have ever had in my life - and I used to play basketball in college - running hills, suicides, weight training, all that crazy insane coach training stuff. Six days a week, three hours a day. I also did that Body for Life Challenge and used to be able to do all of that so easily.

This time, like when I went to get on one of the squat presses, I couldn't even lift my leg up to set it on the platform. I had to lift it with my hands and place it up there. Same thing with going from a sitting to a standing position. I have been forcing myself to not use my hands as much as possible and like get up using just my legs. But sometimes I can't do it. We won't even discuss stairs.

I'm so lucky though. I really am. I mean I have a lot of muscle loss, but at least I am walking. At least I'm fairly healthy and still kind of strong. There are so many people in the rehab center that can't walk at all. So I'm choosing to be grateful even though I'm trying really hard not to get discouraged. I constantly think about Zoe. I think about my friends - and all of you - who tell me... "stay on target," and encourage me. I know I can do this. It's going to take longer than I thought though, but I am putting one foot in front of the other. I am going to get stronger. I just am. But man. Yesterday just hurt.

It's 7am and I'm craving steak?

Anyway, I have off today. I'm relieved. I am going to go to the gym sometime later, but most of all I'm thrilled that Zoe has a teacher inservice day tomorrow and is going to be here tonight for the weekend. How cool is that??? I'm sooooo excited. I can't wait to smoosh on that girl.

Mom and I are also going to go to the grocery store. I'm hoping not to have one of my weird OCD feelings when I get there, but it will be fun to shop and get healthy yum stuff. We've been looking over lots of recipes. Although I think she may ban me from watching The Food Network. I'm obsessed with it now. I like the 30 minute meals by Rachel Ray, although when she says EVOO, referring to Extra Virgin Olive Oil, it drives me nuts. Because not only does she says the acronym, she then explains it too. But I like her.

I was reading blogs this morning (I've been up since 4:30), and I saw the topic of blog/internet friends. Like are they real even though they may have never met?

I know that my blog started years ago after my husband and I split. I have a degree in Writing and used to journal all the time in college and after. Then I got married and I just... stopped writing. I don't know why. Perhaps it was because I was uninspired, perhaps it was because my husband was paranoid and suspicious all the time, but I just didn't write for about seven years.

Then about a year after we split and I started dating, I started this blog. It's been hosted a few places, but here I am, pinky pink and all. I mainly started this because my ex saw that I was dating and went insane. He harassed me via the phone and email at work. It was horrible. He was such a jerk about it. I guess his prediction that I was "So f*cking ugly and fat and undesirable that no man will ever want you again" wasn't coming true and it made him mad.

By this time, Zoe was about three years old. All my old frustrations with my ex were just making me crazy. And I knew that I just couldn't be upset around her. I mean it's one thing to let your kids see you show some emotion, but it's another thing to be screaming on the phone and arguing that "yeah, I should smoke some crack so I could lose all the fat I have" with your ex.

I'm sorry, but only assholes involve their children in arguments or serious issues with their exes. You don't badmouth your ex in front of your kids or tell them your business. It's just a shitty thing to do. No matter what, that person will forever be the other parent to your child. And to the child, that parent is half of who their identity is. Just because you don't love/like them doesn't mean the child doesn't love their other parent. It's confusing to them and hurtful. Hateful even.

If the ex is a jerk, unfortunately the child will find out soon enough for themselves, but you don't need to spell it out for them. It's just not a responsible thing to do. I can't stand it when I hear people do that. I just want to put my foot in their ass.

[aside] I'm just glad Zoe's dad finally has changed his ways. While he's not a horrible person, he just has always seemed to make some really dumb choices. But we get along great now - like old friends. And he calls to check on me quite often. I think he was one of the saddest ones when I was first diagnosed. He also adores Zoe, and calls her all the time (although she's not much for conversations with anyone). And she gets to visit him for about six weeks in the summer and has a great time. When we finally started getting along better, it really made my life so much easier.

So. I started blogging, along with the rest of the world. I never really had much of a readership before I got sick. (or if I did, they didn't really comment). But it wasn't about the readers for me. It was my outlet to talk about whatever. Not a mommy blog. Not a dating blog. Just whatever. I actually used to call this blog "Hostage in My Own Head." It was a way to vent and rant and sob and mope if I needed to without Zoe seeing it or being involved or scared because "mommy is sad." It was also cheaper and less time consuming than therapy. So that when I was around Zoe it was about us. Our life. Our fun. Our joy. Our love.

And then I got leukemia. And this was the easiest way to keep my people informed. To verbalize my fears. To psych myself up for a fight. To maybe help someone who will/is going through the same thing. But then, well, you all happened. I was adopted. Supported. Loved. And encouraged. And you all are as real to me as my own family. So many times I was just sick as a dog, discouraged, terrified, sad, and then... I'd come here and see comments. Like lots of them. And your words meant so much to me. They reminded me that I could do this. That I am doing this. And that I am still here.

So. blog/internet friends, while they may be from all parts of the world, the ginourmous internet, they connect us. They are real. (some are really weird, but real nonetheless).

Today I feel very blessed to be connected (dare I say engrafted) to you all. And you know me. I mean that as sexually as possible. (bahahahaha... that was for my Shosh. I love you, woman!).

Today I am doing this. And now I'm going to figure out that steak thing. Although it probably will just be some peanut butter toast and coffee.


Your assignment for today is to think about someone who has really made an impact in your life. It could be a family member or a friend or a teacher or clergy... anyone, even a blog friend. Someone who is important to you. Well, just give that person a little shout out today. Or do something unexpected for them. Surprise them. You might just make their day. Or your own.

Oh. AND KEEP MOVING TODAY. I need some pictures people.

"It is a curious thing in human experience but to live through a period of stress and sorrow with another person creates a bond which nothing seems able to break." ~ Eleanor Roosevelt

We're stuck with each other.

Sometimes when you're doing simple things around the house

Maybe you'll think of me and smile

You know I'm tied to you like the buttons on your blouse

Keep me in your heart for while ~ Warren Zevon

Posted by debutaunt at April 27, 2006 07:08 AM
Comments

Oh Deb, this is wonderful! You are wonderful. I'm so glad I found you. Here's to strength, and here's to friendship. Cheers! ***clink***


Wha? It's too early for a drink? Well then, make it coffee. ;)

Posted by: eclectic at April 27, 2006 09:12 AM

well, I hope you aren't surprised that I'm giving you the shout out...
my real life friend with cancer doesn't talk about it, so, somehow, it's good for me to read your thoughts.
I admire you so much - you have no idea.
I read your blog before you got sick - it wasn't for me. You seemed angry. You've changed so much (or more likely, what you WRITE about has changed so much) that now I see how beautiful you are.

Posted by: blackbird at April 27, 2006 09:30 AM

Boy oh boy Deb, you put Tony Little and Richard Simmons to shame!!!! We are in the process of moving so I spent most of the day yesterday looking at property; so I didn't get to walk.
However, I did eat very healthy which is a big jump for me. Keep on Moving girl!
Cami

Posted by: Cami at April 27, 2006 09:38 AM

YOU are who has really touched my life - you inspire me everyday! I am about 60 lbs overweight and am taking baby steps to get healthier and more fit and every time I think of quitting (yet again . . . ) I think of you and how you are kicking my ass by working out so well and that inspires me to keep working at it. It may be small but I am on my 7th day of REALLY eating healthy and working out. I may only be able to do 20 minutes on the eliptical now but will keep on making progress right along with you.
Have a wonderful day Deb.
Hugs

Posted by: Lisa O at April 27, 2006 09:47 AM

every day that i don't feel like working out or the kids start making me crazy i think about you and i think about how grateful i should be for even the most annoying parts of life (and let's face it, there are some!), so you've definitely touched my life in ways that are yet to be discovered. you've helped me find more patience for everyone and everything and for all of that i thank *YOU*.

also, it sounds like you kicked some serious rehab butt yesterday. you're sooooooooo doing it! i did my 30 mins. on the nordictrack. i should have done more, but the baby wasn't cooperating. 30 mins is still 30 mins. by the time you're done with all this rehab and president's stuff i bet you'll be in the best shape of your life.

xomox

Posted by: moxiemomma at April 27, 2006 10:17 AM

Hearing about your workout is keeping me inspired!

This morning, I grumped around in bed, hitting the snooze. When the dog finally managed to convince me that it was time to wake up and let her out, already, I realized I had just enough time to work out. As I was getting ready for my strength training, I kept thinking, "You know, I really don't have enough time. I should just go back to bed and sleep." But then I thought, "Deb would kick my ass for that! I bet she's already awake." And then I went ahead and worked out. Power band exercises to tone arms, legs, and core muscles. Hooray!

Posted by: Jessica at April 27, 2006 10:47 AM

I stumbled across your blog a while ago- and have been reading a bit, but haven't been able to make a coherent comment. I have an online journal of my own and I use it for much the same reasons you do.
I needed to drop in today to say I think you are incredibly brave- you give me a strength to fight my own fight with metastatic cancer- you give me hope that one day I will wake up and things will be better. Thank you for giving so much and for sharing your fight with so many. I too believe the 'net can engender 'real' friendships for us just as being face to face with someone can.
Fiona.

Posted by: Fiona Matthews at April 27, 2006 10:55 AM

I was so glad to read that you and your ex are now friends and Zoe gets to spend time with both of you. Such things often get ugly and ugly is always harder.

I am getting myself a little ole pedometer this weekend. It will be interesting to see how far I walk in a day I am guessing 2-3 miles with my commute but we shall see.

Today my shout out goes to you - a newly found blog friend who has inspired me in so many ways with your courage just at a time when I really needed it.

Posted by: MIchelle at April 27, 2006 11:53 AM

Deb.
thanks for stopping by the blog.. it is indeed good news about lillian.. I wholeheartedly agree that the power of prayer from a gazillion interneters seems to work miracles.. here's hopin you get some too!
peace,
bisc

Posted by: elizabeth at April 27, 2006 12:40 PM

thanks for what you said today, deb. today is my 7th anniversary ... and coincidentally also the day the divorce really gets going, and i'm just feeling kind of glum. i know it's all going to be ok, but today sucks. SO hearing you on the other side really helps. hang in there! xo

Posted by: kristin at April 27, 2006 12:41 PM

I found you about a week ago and have been hooked ever since. While initially it was your candor and humor about living with your disease that drew me to you, I spent some time going back through the years to learn more about
'the person" and I've come to like, appreciate, and respect you. (Don't get paranoid! I'm not a stalker.) You are a good writer and I enjoy how you present everyday challenges. You've inspired me (as well as many others) to just better my life and not wait for that "moment" when I get to the crossroads. Thank you, Deb...from the bottom of my heart, er, butt, er, feet.(The further down it comes from the more it means, right??)Heh.

Posted by: Gracie at April 27, 2006 12:46 PM

Sorry about you and your ex; glad things are better now!

So proud of you for already being in the gym and "busting it" to get stronger! You are truly amazing!

Hope you get lots of hugs and snuggles from Zoe!

alan

Posted by: alan at April 27, 2006 01:20 PM

Hi Deb:

I found you through Manolo's blog a few months ago and have been reading daily. Your strength and courage are an inspiration to me, and countless others, as we face our daily challenges. I'm combatting the challenges of aging parents and depression with EXERCISE and when I feel like staying in bed or skipping the gym, I think of you and my strength is renewed. Thank you so much!

Posted by: Rebecca at April 27, 2006 01:30 PM

Deb, I so appreciate what you said about parents not bad mouthing the other. My kids dad does that all the time. I wont. Its so difficult sometimes. They do learn on their own, sometimes way earlier than you'd like.

I'm glad your ex turned things around. Good Job!! Really, that is a real man. My ex, it'll never happen (I hope it does, but sadly it wont).

You go with your workout self! You just rock! I cant tell you how proud I am of you.

Love,
Dawn

Posted by: lawbrat at April 27, 2006 01:41 PM

Hi Deb,
I came back to check on you, it's been awhile. I can't believe your progress, well, yes, actually I can believe it but I'm so happy to hear that you are keepin' on, stayin' the course girl. It's tough I know. I've been walking and I feel some results and I'm sore but I know I have to keep going. I will think of you when I take my walk tonight, you have inspired me and I am thankful.
Bless you.
Oh I too love Rachel Ray and thought the same thing about the EVOO, nuff already, we are not complete idiots! I love her tho.
Kathy

Posted by: dashababy at April 27, 2006 03:14 PM

Deb,
I thank you and the "sisters" for sharing your private medical history, because of you and the "sisters" I registered to become a Bone Marrow Donor last month. I am grateful for to both families for sharing, you both have impacted my life. On one hand ashamed it took me so long to do but on the other hand I am proud because I did it. And I am willing to do what ever they ask if I am ever called by the registry. So I thank You and SWLF for sharing your private and painful journeys.
I hope and pray for peace and happiness for both families.

Posted by: Nancy at April 27, 2006 03:56 PM

Just thought I would give an update - my boy was selected as a bone marrow transplant donor today. Not exactly sure of the when and wheres - but soon.

Reminder for those of you that haven't signed up to be one please do! It can and does make a difference!

Loves you my friend!

Posted by: d1 at April 27, 2006 04:30 PM

You are an inspiration to us all!

And about the steak craving thing...you need protien! So...eat more protein!

Take care and much love!

Posted by: Lauri at April 29, 2006 09:16 PM