I'm going to talk about dying again.
Because I'm just fucking sick of it. And no, I'm not going to apologize for my language because, well, I just am fucking fucking fucking sick of it.
There is no word in the English language that can convey the anger I feel about cancer except fuck and all its variations. So if you don't like it, well I'm sorry for that, but it's my blog and using that word is the only way I can exactly say how I feel about this. So with that said...
A year ago, the word Grace meant so much to me. It was to be the name of a child I dreamed of adopting with someone I loved enormously. It was our secret. I mean really way bigtime secret. I don't think I ever even spoke of it much less wrote about it to anyone except for him.
It was a dream. And just the word Grace would make me smile. It was a hope that we wished for and longed for. It was special to me because it meant a future. Life after cancer, and that I could and would get through this. That one day I could feel "normal" again. That I actually was going to *have* a future.
Brenda died today.
I know people say "she's at peace," and "she's in a better place," but I'm sorry, no one really is at peace with dying. Brenda most certainly didn't want to die. She was afraid. She was really scared. We talked about that often. Like a lot. But you put on a brave face for everyone else, for your loved ones, your children, your medical team. You have to. You feel obligated to fight and be strong and be brave. "She died from a long battle with cancer..."He was strong up until the end..."
You put on a brave face for yourself. And you psych yourself up like an athlete. I AM CANCER WARRIOR. While basically you are still scared shitless. Anyone who has/had cancer knows this. At least once (most likely more) you know death intimately. And even year(s) later, you still live with its shadow. Yes, everyone will die someday. But with cancer, you feel like you have a target on your back and you are being hunted down. You can dodge and jive, but you just pray and hope and wince that you don't get pegged again.
I'm sure Brenda came to terms with the fact that she was going to die. She didn't have a choice.
"At peace" makes everyone else feel comfortable. I will NEVER be at peace with dying. I want to live until I'm old and senile and just plain ready to get the hell off this earth.
And as for a "better place?" No. A better place would be Brenda. Healthy and living with her husband and two boys. Visiting me and drinking margaritas on the Riverwalk. Looking for the basement of the Alamo. Living the exuberant life she did. For a long long time. Yes, of course, anything is a better place than being in a hospital, struggling to breathe, swollen, sick, knowing that you will be dying soon. Your body completely betraying you. Knowing you will be gone and having no idea for sure when it will happen. That's a horrible place to be.
With cancer, you can cope or not cope. Either way, usually you have to go through treatment and you can deal with it or you can freak out. You don't make peace with anything. After a while, after you freak out from the initial shock of what is happening at that particular time, you just resolve that "it is what it is." It's not peace. It's more of a truce. Or a concession.
I'm not at peace with the fact that I will never look like Heidi Klum. But I deal with that. Because "it is what it is." And no amount of plastic surgery, exercise, or dieting will ever make me look like the Auf Queen of Project Runway.
The only "better" about Brenda dying is that she will no longer have to literally be drowning from lack of lung capacity. I believe there is a Heaven. And I know Ms. B is there. So for *my* own peace of mind, I imagine her running around. I picture here in her Team in Training gear. I'm sure she is probably introducing herself to everyone as she is quite the social butterfly.

I'm not at peace with Brenda dying. I'm frustrated and sad and angry.
But you know why God made me so stubborn? Because I'm not done literally shouting from this space about how much cancer fucking sucks and how it should be smitten from the Earth. This is not about me. Don't feel sorry for me or sad for ME. I knew Brenda from the internets. I knew her well, but I had never even met her. She was my secret sister. She was my solid. And she is and will always be my purpose. As will Sarah and Nikki, and Clem, and Paula and Ashley, and Kadin and Joseph and Nick and Uncle Roy and all the others that I have grown to know and love and cherish. All the others that WE have lost.
Fuck you, cancer. You may take me one day, but I will fight like a motherfucker to beat you down like that cowardly fuck you are.
I'm sad, but I am driven. And I know Brenda wouldn't want me to be sad. She'd want me to keep fighting so her struggle and pain and fear and her family's sacrifice wasn't in vain. Her illness and now her death only strengthens our resolve. She has inspired many people to continue her legacy to find a cure. To kick cancer's ass.
Brenda sent me an angel today. I got an email from Allison Sattinger. She sent me one before, but my spam-grabber nabbed it I guess. It was so kind and came right when I was crying really hard. When I first found out about Brenda, Zoe was right here. So I had to keep what little composure I could resurrect. So when Zoe fell asleep, and I started writing and internetting, I just really cried. A lot.
Allison is a lurker *hiya,* but literally has the voice of an angel. She told me I should listen to her tune, "So Much Grace." So I did. About 14 times. And it is complicated and lovely. I am now a fan for life, but that song made me feel that Brenda was reading as I was writing. Telling me what to say. And to tell me and everyone else that it will be ok. That we can do this. She was always so positive about going through this together.
And I still am crying, but I will be ok. For I am The Debutaunt. I am mother of the magical Zoe, the bird talker. I am Debster, Debuma, the Queen of the Universe and the Queen of Delft. I am a survivor. And I am a warrior. I have no choice.
I can do this. I feel you, Brenda. You and Sarah and Nikki are the trifecta of awesome. I love you.
No assignment today. Just speak.
If you would like a link on www.teamzoe.net, just let me know. I've added a section for my Team in Training lovlies. Zoe is amazingly at over $650 now. And we are barely getting started. I even started working on a dorky myspace page. "Friend me - wheeee!!!" But it's a great way to communicate and link to others and spread the word. If it helps us raise $10, I'll be thrilled.
P.S. I love you Dad.
Posted by debutaunt at April 15, 2007 03:02 AMBeautiful post, Deb... No worries about the f* bombs.... I've used them too.... *hugs*
Posted by: shayna at April 15, 2007 09:50 AMThank you for keeping it real.
Posted by: Karla at April 15, 2007 10:13 AMNo one could of said it better...thank you.
Love to you
Paula
Sometimes the only word that portrays the pain is
the F word.
Ditto what the other folks said, you said what
most of us think.
Mucho love to you Deb
There's no word for cancer but the f-bomb. I'm so sorry that Brenda died. Thinking of and loving you both, and Zoe, et. al.
Posted by: Angie at April 15, 2007 01:48 PMI knew your strong voice would be heard this morning. I just knew it. I'm sorry Deb. Your pain is vibrating off this post. Your words about fear and choice struck a chord with me today. My mom never got to the point of acceptance or calm or whatever. Thank you for helping me look at her 'stuff' differently. My thoughts are with you. Peace.
Posted by: Traci at April 15, 2007 03:29 PMI'm sorry that this has happened yet again. It really never gets easier.
Posted by: amanda at April 15, 2007 09:54 PMThere are no words, only hugs.
Posted by: mrtl at April 15, 2007 10:08 PMFuck. Just...FUCK.
Posted by: Fiona at April 16, 2007 03:26 AMI only knew of Brenda through your posts, but her story definitely affected me. I cried my eyes out yesterday and yelled at my husband about finding a cure faster (he's a cancer biologist in training).
I never mentioned it, but when I was 12 years old, my 14 year old friend (who I had known since we were all in diapers) died after relapsing. He had leukemia. I don't remember many details of the cancer itself, just that one year he was in remission, and the next year he was gone.
I have to wait until my husband gets paid again, but you will be getting more donations from me. Fuck cancer. My husband is working to destroy you in all forms.
Posted by: Jessica at April 16, 2007 08:54 AMYour writings about Brenda made me feel like I knew her. She was so beautiful and you gave her life through your postings. Please keep writing about her, I want to feel like she is alive.
I'm so sorry for your loss, cancer is a motherfuckingsonofabitch and fuck fucking cancer for stealing Brenda from us.
My heart is with you Deb and I am here anytime you need to talk.
Brenda was such an inspiration to all and I thank you for saying this as we all wish we could have...I HATE CANCER!!!
Hugs to you!
Posted by: Stephanie at April 16, 2007 02:37 PMI love you, Deb. xox
Posted by: Ms. Pants at April 16, 2007 04:02 PMWOW! Battling HIV realated Hodgkins and the FUCK word says it all, but I also do the braver than the rest. I end up consoling the people who are sad about me, when all I really want to do is scream at the top of my lungs, "WHY THE FUCK ME","WHAT IS THE FUCKIN LESSON TO BE LEARNED", "WHAT THE FUCK".Ooooo! I Just said it!THANKS FOR FOR A GREAT POST!
PEACE AND LOVE
I hate to hear of Brenda's passing. I think I know what you mean.
My father-in-law is dying. He's 80+. He's lived a long and mostly happy life. His lung disease is so advanced that a day out to see a doctor, to have lunch, to drive to the beach, whatever, anytime moving around leaves him bed-ridden for a day or two. He gasps for air. His medicine has left his skin paper thin and it tears easily. Doing anything is painful. And despite all of that, he wants to live. He fights for it every...single...day.
And what does he do with the time he fights for? He watches TV, passing the time until he goes to mass. He goes almost every week. And he doesn't attend, he participates. He can't walk, he can barely talk, but in church even on oxygen he will sing as loud as croaking voice will allow. It's amazing to see.
Brenda may have some peace and relief from the pain but dammit...it just sucks. You and Zoe and Brenda are in my prayers. God be with you.
Posted by: Patrick at April 16, 2007 06:04 PMYou're right !!
Posted by: Sandra McNally at April 16, 2007 06:42 PMI am coming in late. I am so so so sorry to read this. This has me in tears and right pissed off. We have to beat this. Cancer is taking too many wonderful people. Just not FUCKING FAIR.
Posted by: Missy at April 17, 2007 04:52 PMthank you for keeping me up that night. i didn't want to sleep. i love you. maybe we can talk sometime. keep fighting. you're doing this.
Posted by: miah at April 23, 2007 12:49 PMI'm mad that Brenda died and I don't even know any of you. I am just so angry that this disease seems to have so much power. Cancer sucks doesn't even cut it. There are no words to describe how I feel about cancer. I am very sorry that you lost your good friend. Keep that ferocious spirit going.
Posted by: patrice at April 23, 2007 07:48 PMCancer fucks - fucks you, fucks your life, fucks your family, fucks all the things you loved!
I found this blog from the LLS website link while trying to find some answers on my latest test results - CML patient for 11 months now and I am now sitting her pissed and crying all at the same time.
Yes, cancer fucks!
Posted by: Sherri at April 30, 2007 11:43 AMYeah, cancer is the pits. My beautiful teenage daughter had it when she was just 13, and was told she'd never survive it. Now, it's almost 14 years later, and she's alive and well. She's a wife, mother, nurse, and blessed daughter. This week I had to tell her that I have cancer. Over the years I have often commented on the fact that she was filled with "so much grace" when she battled this vile vile disease called cancer. Then Allison Statinger wrote that beautiful song and said it just like I felt it. My daughter sings it, her not quite 3 year old son not only sings it perfectly, but with a beatific expression that shows he truly knows what it means (yes, he's a ham, but he's never seen anyone sing it with the expressions he uses) and I sing it. In fact, I listened to it this morning, and it filled me with joy and grace.
I haven't cried yet, or lost a moment of sleep. I'll be getting more information next week and my treatment options. Admittedly, I don't know what tomorrow, or the future, has in store for me. Maybe someday I'll cry and scream and rant and rave. But for today, I'm holding on to so much grace. May be you blessed today.
Posted by: Sally at May 11, 2007 11:08 AM