June 21, 2007

P.S.

BTW, I'm not saying not to continue with embryonic stem cell research. I just wish we could put as much effort into making people more aware of adult stem cell research. And the bone marrow donor list. The cure rates would probably go up if we had more people (and cord blood donations) on the list and if they had more funding to more quickly advance the research they already know works and even perfect it. e.g. gvhd issues for transplant patients. Or expanding their research on paralysis or Parkinson's.

I can't get in the middle of the hot topic embryo / fetus issue because I can see both sides of the picture there. Sometimes it's just not worth wasting your breath on an issue with such passionate sides. But when you have something that is working, why not subsidize that more and continue making progress there? Embryonic research is the big push button. Can't we emphasize my beloved adult stem cell research more?

Why put our money on research that is in babysteps when we have some legitimate and viable solutions with more discoveries every day? Sure. Keep on doing embryonic research. That's ok. It is kind of laughable to me because so far the research there has been fruitless. But don't push for the majority of funding into something that is so iffy. That's what I'm saying. Why put all your focus and effort and manhours on embryonic when Adult Stem Cell research is making real progress?

When I was trying to get people to sign up for the Thanks Mom Marrow Donor Drive registry, I called and emailed my pal Lance Armstrong's Foundation. They would not publicize it, email about it, nor would they post it on their site. I was told that they would tell the phone banks for people who called in to the foundation. Yeah. That's what people call about (NOT!)

When I tried to get my daughter's Catholic school to put fliers about our drive in the kids school folders (I even offered to do the work) I was told that I could leave them in the lobby of the school for those who were interested. Yeah. We signed up SIX people out of over 5,000. They were all really interested. *rolls eyes here.*

I'm sorry, but when you (e.g. Lance Armstrong) send me a zillion emails at the touch of a key, and testify to congress and preach and make your living talking about beating cancer and survivorship, and yet I never read anything on your site about the advances they make in cancer CURES with adult stem cells, well it just kind of... pisses me off. Same goes for the many cancer informational sites. No info. It's all about breast cancer and what a beast George Bush is (talk about a job I'd never want!)

The time is now. Get over the drama about the stem cell debate. Just take that word out of the equation. Even the National Marrow Donor Program won't even say the word *whispers* stem cells. They use the phrase "blood producing cells" in their literature.

Everyone hates disease. Especially cancer. As Lance says... we have a 9-11 every few days from those who die of cancer. Put some effort behind something that will make a difference. IT MAKES A DIFFERENCE!! Just ask anyone who has survived a stem cell transplant. Like ME. My family. My Zoe. My friends. It has made a difference. At least I hope so.

I hate that I had friends die from cancer this year. I hate it. And I cry sometimes because I wonder if we had more emphasis on this type of research years ago would they have survived? Would it or could it have made a difference in any of their lives? It makes me so angry. And I wonder... if God spared me so that I could open my big mouth about this topic. So that I could change and inform the many people about the possibilities and the cures?

Please don't let me shout alone. I am shouting for Sarah, and Brenda, and Eric, and Clem, and Ashley, and Gayle, and Cookie, and Kadin, and Paula, and Joseph and all the many loved ones we lose every day.

Don't make me have to stage a boxing match with Michael J. Fox, ok?

Posted by debutaunt at June 21, 2007 06:29 PM
Comments

Great speech, honey.

Posted by: kami at June 21, 2007 07:32 PM

Sweetie, I feel your pain. I've been battling with my job trying to get this announced. We have a wellness account we can use to pay for health related expenses that will cover the registration fee. They STILL won't send anything out or add it to the list of possible reimbursements. I have to go through this whole ordeal to get the organization approved and I have to find someone to sponsor it with me. I'm waiting for the marrow.org folks to get back to me with info about setting up donor drives so we can hopefully expose several thousand of my co-workers to the Registry.

I've registered myself, but I'll keep doing what I can to get more.

Posted by: Minou at June 22, 2007 10:41 PM

I've read both posts that address this, plus what I've read about it all before, and I really don't understand the problem with doing what works! Adult, embryonic, whatever...if it works, use it! And if it has the potential to work, research it more and find out if it will work at all. And you know I'm Catholic and everything too....

And I just have to say this...Lance, you're cute and all, but you really annoy me.

The only place I work is home, and I don't know that many people here-certainly not a group big enough to organize a drive or anything, but...I want to help out any way I can. So, if anybody needs any help organizing something let me know!!!

Oh! And please don't hurt Michael J. Fox. Cuz I know you would so TKO him in one punch! lol!

Posted by: Lauri at June 26, 2007 09:05 PM

I think you are amazing. And I think odds that are stacked against usually topple with enough people like you pushing :)
xoxoxoxoxoxoxoxoxoxoxoxoxoxoxox

Posted by: Allison Sattinger at June 27, 2007 12:17 AM

I think you are amazing. And I think odds that are stacked against usually topple with enough people like you pushing :)
xoxoxoxoxoxoxoxoxoxoxoxoxoxoxox

Posted by: Allison Sattinger at June 27, 2007 12:18 AM

Great discussion of the topic. I'm glad to see a treatment of the issue that goes more in depth.

BTW, my 84 year old father in law is in the last stage of his fight with COPD (Chronic Obstructive Pulminary Disease). He's a tough old bird. The family has gathered from around Texas and the country but it been mainly a lot of waiting. Now the reason I bring this up is not that COPD is in anyway related to stem cell research, but because of this....Wednesday after lunch the grandkids were looking for something to do. I said, "I'm going down to M. D. Anderson to give blood. Wanna join me?" So instead of 1 person going to donate, we had 3 with a comittment for 2 more (that I WILL enforce.) Sort of a lemons to lemonade kind of deal.

Posted by: Patrick at June 29, 2007 11:38 AM
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