July 09, 2007

High There

Have you ever been in so much pain it work you up?

I have. Often. And especially this morning.

Why is it when this happens to me I am not in Houston so I can go see my peoples at MD Anderson? I dread even finding out the cause because it means another gazillion tests and waiting and feeling like a big hypochondriac only to find out it's one of your meds. Every headache is a brain tumor. Or just that you slept funny on a bad pillow.

So now I'm going to go get some yogurt because I just took a Darvon (which I almost never do anymore.. it's been a long time since I took pain meds) and am getting so high but want to go back to sleep to see if this pain will subside so I can live today.

Since I'm high, I'm going to blather.

I'm feeling very homeless lately. You know that feeling you get when you go on vacation and you have a really fantastic time and then you come home and are like, "ahhhhhh..... I'm home. My own bed. My own sheets. The sounds and smell of your own house.

Well I don't have that anymore. it's a series of packing and unpacking. Trying to make things fit in a space that isn't yours. Trying to be a good house guest and not annoy people or have them burr at the clutter that is now part of their home. The invader of their space. I want my things back. I want a closet that is mine that is big and where all of my clothes fit. I hate it when I'm wanting to go somewhere and I think, "Dang. I wish I had that bracelet, but it's in San Antonio or a shirt that is packed in storage." I already feel like I bring my world with me, but I'm a girl. We like to have JUST the right pair of shoes at the right time. But gosh, I sure hate hauling all this stuff around.

[aside]
Don't get me wrong. I am having a wicked fun time and absolutely love seeing my family. Even if we weren't related, I would want to be friends with them because they are so cool and fun. I'm lucky that all of us live in Texas so it's basically a tank of gas or two to get me to them. And they don't *make* me feel like I'm overstaying my welcome. They actually go way out of their way to let me know that they are glad I'm here. And by here, I think it has a double meaning of ... "Shit, Deb, we are just so damn glad you didn't die." Besides, I try really extra hard to be not just a good houseguest, but one that has some value added - like doing some cleaning or babysitting. It's honestly the least I can do for the people that helped me kick cancer's ass.

Someone play the lottery for me because I can't seem to remember what it is like to have my own space and my belongings. I feel like I will never have that again. I applied for a credit card at a clothing store the other day so I could get a discount on my purchase. Sis #1 said that was bad because it lowers your credit score every time you apply for a card.

And it was weird, but I was like... and? My credit is already so fucked that I didn't really care. I have no job. I can't imagine working again. I can't imagine living long enough to even need a good credit score - you know for things like buying a house or purchasing a car. I feel like I'm flying by the seat of my pants. I have no idea what kind of future I will have. Because for some reason I can't even picture it.

Sis just blankly looked at me and said that it will happen. Same way as my mom once looked at me one time and said, "when you get married again...." Like without thinking twice about it. As if it were a given.

I don't know why, but I don't feel like anything is a given anymore. I feel like I did when I was being treated... "Ok, so what do I have to do today? What is on the schedule for today?" I can't even see past today. I don't see a house or a husband or even a boyfriend for that matter. Um... How can you date when you don't have your own space? What? Do like I did with jerk-face Elvis? Hang out at my PARENTS house all the time? It's worse than high school.

I see Zoe's future. She's got the world right there. I just hope I live long enough to encourage and support and love her so that she sees how bright her future is. I hope that if I die, my family and friends will carry on that mission (and not her dad.. God love him, but he's not the type to see what I see) My beautiful, smart, funny little bird-talker can do anything.

But it's so creepy to not see your own future. To not have any idea how to make it happen. Or even really the desire to do so. I know I could work and go back to what I was doing. Supporting myself. Making a wage. But it is such a mundane existence. To work for "The Man" and to barely ever see my child. I love her so much, but I didn't love being a single mom. A single working mom.

That's been one of the greatest things about getting cancer. How fucking sad is that? That now that I'm unable to work, I can actually do the kind of things I wanted to do before - you know, the soccer mom things. I always wished I could have been a stay home mom.

But as they say, be careful what you wish for. I guess I never figured that cancer would make my stay at home mom thing happen. My scenario didn't quite go like this. It was more of a Susie Homemaker one... the house, the husband, the dog, the minivan. I wanted summer vacations traveling across America. Taking my daughter to gorgeous beaches in California, seeing Disney or Legoland or the Grand Canyon.

Not quite what I got, now is it? Mooching off of family to shack up for a week here or there. Saying a quick hello to Zoe on the phone. (man, she's having a great time, so it lessens the whole missing her nutso) And not knowing what is in store for tomorrow, much less a future.

Does Darvon turn anyone else into a big fucking whiny baby? Cos it apparently does it to me.

Life isn't handed to you. It's hard work. It's responsibility. Gainful employment. Taxes. A J to the O to the B. I get it. I have done the work thing before. I wasn't always a slacktastic blogging goddess. I worked for my meager living. For many years. I sucked at it, but I did it. We all do it.

I get emails all the time from people with suggestions of how to do these awesome creative things. Write a book. Learn coding. Design websites. Become a motivational speaker. Find your passion. Sell realestateskincarevitamins x, y, z. I'm sure I could do any or all of those things.

But honestly, I get exhausted from just doing laundry sometimes. I have days where my body tells me... stay in bed or I will make you pay the price.

So how exactly does that happen post-cancer? How do you get up, make yer coffee, shower, dress and commute when all you want to do is hack your brain out of your skull because it hurts so bad?

I can't figure it out. So instead, I'm just going to go get some yogurt and go back to sleep. This is what I know is happening for today.

I can do this. Like I have a choice?

Your assignment today is to laugh. Life is so hard sometimes that basically all you can do is throw your hands up in the air and just laugh.

Oh. Also, do something daring.

I am not much of a pet person. We never had them growing up because we had a zilliondy kids and no one would do the clean poop thing. So anyway, I went with a friend to Bull Creek here in Austin. It's a natural little creek and it has this beautiful waterfall/swimming hole kind of thing. Lots of people bring their kids and/or dogs and they just hang out. Very Austin-ey.

Now I like the outdoors, but I hate the heat/sun/bugs/ and other funkaphenalia that makes up nature. I don't like to sweat or stink. And I am like Bren/Cody's Mom. I am either blanco or rojo. My skin does not know the meaning of tan. I probably would be outdoors all the time if I could take the sun and/or the heat, but I just can't. Fact.

So my friend has these two big gangly Golden Retrievers. And they are like nutso for tennis balls. So I was like... ok. fuck it. I'm going to go out and play. Sis #3 said she won't bring her dogs there because there are all kinds of doggie disease and funk there. But I wanted a little freedom.

Sunscreen - waterproof SPF 50
Ballcap
Lots of hydration
The ugliest crocs known to man given to me by BIL #1
Purell
Visa card
Sunglasses
Medical Insurance card
Medalert bracelet
cell phone
extra sunscreen for my lips

I was set to go. And damn it was fun. We mucked around for hours in that water. Walking on the rockbed covered in slimy slime. I picked tennis balls out of the water. Let one dog use me for a towel (he doesn't know how to shake off the water well enough so he will sneak a rub on you to dry off - or go to a strangers towel/picnic setup and dry off. Grabbed balls out of the dog's mouths with my BARE HAND. And generally laughed and splashed around the joint.

It was the most fun I've had in a long time. It actually made me think about getting Zoe a dog since I know she loves them so much. But then I was like.. nah... we can be like grandparents to our friend's dogs - that way we can give them back.

And if you know anything about me, you'll know that mucking around a bacteria-laden creek and touching slimy tennis balls and/or wet dogs is not my cup o'. But it was simply AWESOME!! When we got back into the truck, the dogs were worn out and tired. I even looked back and let the blond one smoosh his face up to mine. I think he may have even licked my cheek

So... do something daring. You never know, you just may have the time of our life! I know I did. It was so freeing. That must be what it's like to be a dog.

I double dog dare you.

Posted by debutaunt at July 9, 2007 07:26 AM
Comments

I have never had Darvon. Must try it with you, and we can have a big ole' sad bitchfest together.

Must see the ugly Crocs.

((((HUGS))))

Posted by: kami at July 9, 2007 09:11 AM

Hi Deb, I know exactly what you mean. Not being certain about the future. I didn't go through as much as you have, but I feel the same way. Some days the pain in my back and legs is so great that all I can do is laugh so that I don't cry. But you know what we are here today, so we have kicked cancers ass. Even though all those live saving drugs are taking a toll on our bodies.

You will see Zoe grow up!!!

Plus you insprire me!!

Hugs
Paula

Posted by: Paula Smith at July 9, 2007 10:01 AM

Deb. I'm not a professional however it sounds to me like you've got a whopping dose of depression going on. It is a totally normal response to the events of your life the past several years. I wonder if you've thought about talking with someone (yea, a professional)about all this. Sometimes it helps to know you're not the least bit 'odd' and that the things you're feeling are completely normal and to be expected. I'm thinking of you...I simply suck at telling you lately. Peace honey.

Posted by: traci at July 9, 2007 10:48 AM

Hey Deb - I just wanted to say hello and give you a great big cyber hug. You are NOT a "baby" - you are just human and have every right to want your own niche. I can only imagine how hard things must be some days but being + helped you kick cancers ass (!!) and I know when you are feeling less pain you will be feeling more ++ again. I truly believe you have a wonderful future ahead of you.
Hope you are feeling better this afternoon.

Posted by: Lisa O at July 9, 2007 12:11 PM

..you make me laugh and cry all at once... I wish for you so many good things.

Posted by: Elizabeth at July 9, 2007 01:19 PM

Okay, did something daring: Last week I climbed Enchanted Rock! Well, actually, I ALMOST climbed Enchanted Rock. 3/4 of the way up, I said the dog was getting tired and sat down with her. She was so ready to get out of the sun, she started digging in the dirt under the rock to make herself a cave like spot to squat. So, being the good human in her life, I pulled out my umbrella and sat under the umbrella with her to enjoy the shade, the view and the people that stopped and squatted with us! It was great fun. I never knew so many people had minature dachshunds in this world. Seemed like everyone has had one or knew of one or something, at least that is the stories we heard. As for the work thing....I'm back at it. Gave up the 'stay at home' mom gig, if you could call it that because the daughter is to the age where all she wants to do is go, so I became the driver. The rest of the time she pretty much didn't know I was around, unless she needed something to eat or clean clothes. And, yes, I wake up from pain every day. Been like that for about 12 years now. Actually, were it not for pain, I think I'd forget to wake up, it's been happening like that for so long, it's become my alarm clock. It hurts too much to stay in bed and then when I get up, it hurts so much all I want to do is go back, but I trudge through the day. My goal during the day is to find ways so that it doesn't hurt be that sitting this way or that, or standing or walking or whatever it takes. Sometimes all I want to do is stretch my body like on a torture device so that it will stop (at least in my mind I imagine that it will stop) but short of those magical painkillers, there isn't much on some days that even makes me smile, so I can relate. I'm hoping the work will take my mind off of it. It does most of the time. I have't done the cancer thing, but so much of what you say I can so relate to! My next birthday is 50! I've never had a BD party and I told the spousola I wanted one for that biggie, let's see if I get it! Hang in there, doing fun things that make you laugh cuts it all in half, believe me!

Posted by: Denise at July 9, 2007 03:27 PM

You said it well. Life is hard, and life is not fair for some people. I pray it gets better for you.

BTW-make sure you eat lots of cake on your birthday.

Posted by: Claire at July 9, 2007 05:01 PM

Just checking in to see how you are doing and wanted to say that your stream-of-conscience blog today really touched me. It was like a little window into your soul, and I'm constantly amazed at how brave you are to share yourself with all of us.

Your fierce love for Zoe, your will to see the bright when many would be wallowing in dark, and your fighting spirit inspire me.

Posted by: hermillion at July 10, 2007 01:42 AM
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