I'm just really tired of my doctors havin' a guess at what is ailin' me.
Well it could be x.
Or it could be y.
Or even maybe z.
Or perhaps it's x, z and 1, 2, 3.
Most likely it's a side effect of your meds.
So I'm going to have you do this test that you felt you might need, (which is not related to the pain you're in) but other than that, I'm basically going to do nothing and you are just stuck having this terrible pain for the rest of your life. And you should be grateful that you even have a life.
[aside]
Yeah. I'm glad to be alive. I'm thrilled. I'm lucky. Most of all I'm blessed. But you know what? Why should I have to be grateful for it every millisecond of every day? It's like when you have a crappy job, but your boss makes you feel like you should just shut up because there were lay-offs and you are just LUCKY to have this job. You have to grovel and suck it up and be made to feel like you are stuck forever with this crappy job just because life is tough and it's hard to find a job... any job.
Well that's how I feel. I'm glad to be alive. I am. But if I have to be in this pain for the rest of my life, what good is being alive if you can't sleep from the pain and you can't walk or sit without pain? Should I just become a pain killer junkie? Take drugs for it 24/7?
I WANT TO KNOW WHAT IS CAUSING THE PAIN. SPECIFICS HERE PEOPLE!!
I don't want to guess-timate at what is wrong. Hell. I can do that myself.
[aside over]
Are there tests for these guesses?? Can we find out something for SURE? If it's the meds, can we actually *try* to change them or fix it? Yes, you talk about what you know and what you think it is, but if you don't do anything, I'm basically paying a freaking fortune for you to play doctor. DO SOMETHING!!!
This is kind of like when I got diagnosed in the first place. It basically went like this.
Me: I feel like crap. I feel like my immune system is basically saying 'fuck you' right now.
Doc: I think you're sick. Let's give you some antibiotics, do some bloodwork, and then see.
Me: But this doesn't feel like just your average infection. I'm really feeling superbad.
Doc: Well call in a few days if you aren't feeling better. Just take the antibiotics; I'm sure you will feel better in a day or two.
This was Wednesday. On Friday I went to the suburb ER, transferred over to MD Anderson when they found out I had leukemia, and 3 days later I was starting my chemo.
Monday. My Doc's office calls: Ms. Deb_u_sick, can you come back into our office? We just got your labs back.
Me: Lemme guess. My white count is crazy high. Because right now I'm at a cancer hospital and I'm fixin to start my chemo in an hour or two.
Doc's office: Ok. Ok. Well good luck with that.
I know doctors aren't perfect. But I'm really aggravated about this. This pain is unacceptable. It's making me whine. It's making me limp. I'm going nuts from not being able to sleep well. I'm sitting here and it's excruciating. On the pain scale, I'm at about an 8; 10 being childbirth. I'm the face on the smiley face scale that would be about a 4.5.

Yes, I'm glad to have a life. I'm glad to be alive. But I can't handle this pain and I don't want to live all numbed up with drugs. It's not my debu_style.
I can do this. Although today I am not so sure.
Remind me to tell you the story about my pool-hustlin, bird-talking Zoekat.
No assignment today. Just have a good day for a Monday!
Posted by debutaunt at January 14, 2008 06:26 AMPush them Queen until they find the answers, or take a trip to Houston!
ICK on that pain-
Posted by: claire at January 14, 2008 02:50 PMHey. I haven't checked in for a while.
I just thought I'd share something amusing. During one of my hospital stays, I was given one of those big mugs with the face pain scales on it. My husband jokes that the faces indicate how full you need to fill the mug with liquor. If you're really in pain to the ten (or five on your scale), the whole 32 ounces will make a good start. It amuses me to joke about that. :)
Hope you are feeling better.
Rachel Y.
Posted by: Rachel Y. at January 24, 2008 09:49 PMthey forgot "pain so bad i'm warping into another dimension" i had malignant hypertension and that pain was that "pain" that my grandparents told me about that would humble me to the point of no return.
i never want that pain again.. so i must take maintenance drugs OR i'll have that pain and worse the second time around. the pain was in my eyes and they bled.. then the pain was in my forehead then that bled... good thing i went to the E.R. i had an hour left they said.
now how'd they know that? or was that just a guess?
they gave me some killer pain meds.. dilaudid (for terminal patients.) i loved it because within pica seconds a week's worth of hell was vaporized.. goners.. i was stoned to death but since i was dying and had just ONE HOUR left... i guess that was the best choice i had.
then they put me in a dismal dying ward for 2 weeks.. blah not even a BATHROOM! i had to poop and pee in boxes and bags with tubes going into my body hehehehe.... not much food but a machine hummed along with me all the time then once i developed feelings for the machine.. they pulled it away and hauled me to the "not dying anymore ward". :D
it was interesting... weird along with preachers and body bags... very... awakening i guess would be the word?
i also felt 10 inches tall.. i don't know why.
Posted by: ljs at January 25, 2008 03:00 PMDebs--I am really sorry about the pain (and I realize this post is a bit out of date even as I'm writing this). You also have noticed that "you should be glad to be alive (so stop bitchin' about the pain)" vibe that doctors sometimes give off.
That's why we need BETTER AFTER CARE.
Did you create the pain faces? I like those--a better indicator than the one to 10 scale.
Here's my take on that:
Questions I Hate: Pain
http://www.assertivepatient.com/2007/01/questions_i_hat.html
Weather report for Seattle: snow in the forecast. I may harness Connie to a sled, if I can find anything like a harness. A leash would strangle him.
Jeanne