Ok. Yay for my SA doctors. I may have some deals with them, but I know they are so sweet and caring.
I still have no idea what is going on, but at least they ran some tests today.
Low potassium
Swollen ankles (cankles even!)
Chest x-ray
Lasix (then they were like whoops... your potassium is too low for this drug, so here are horse pills)
MRI
Morphine
Does anyone else realize how hard it is to take off your bra for a chest x-ray when you have an iv in your arm and you can't bend it???
Prescriptions for muscle relaxers, Vicoden, more potassium.
I need to have tests done at MD Anderson. Pulmonary Function, MUGA and a bone density scan. I emailed them, but we will see if they actually get the appointments set for when I am there.
Can you tell I'm still high from the morphine? Either that or just overwhelmed and exhausted.
Exhausted. I could sleep for days.
I need a vacation from my vacation. I can't deal. I'm not dealing well with any of this.
Short entry. Beatlejuice is on and I've been sooo missing my bird-talker. I need some major snuggles with that child.
I miss you internets. Especially my Collins, my Emily G, my Sis' #1, 2, 3, my Linda, my Bren, my Lisa, my Pam, my Kami, my cousins, my Damien, and my Shoshie. Because you all belong to me. LOL.
AND WHERE ON EARTH ARE THE ELVIS PARTY PICTURES? HUH? HUH??
Posted by debutaunt at January 14, 2008 08:14 PMWell this is a start-now it's on to M.D.Anderson.
I am sorry you have so many crapola health issues.
I will pray that someone gets to the bottom of this,
meanwhile hug the Bird Talking child.
XO
Posted by: claire at January 15, 2008 06:48 AMDeb,
Glad to hear there is at least a little relief in your pain. Hopefully the folk in Houston can find out the root cause of the pain. In the meantime I hope you continue to improve. Curl up for a little time with Zoe to pass a cool winter evening. I imagine that may be the best tonic of all....but just in case know that you are ever in my prayers.
Patrick
Posted by: Patrick at January 15, 2008 08:12 AMOkay, let's talk pain. Been there with the: yes, we believe you when you say you are in pain. No, unless you go through this 6-8 hour surgery in which we cut you open on the front, take out your insides and fuse metal rods to your back bone, then put your organs back in and flip you over, cut you open on that side and fuse bone to the back bone--which we estimate can improve your pain levels. Okay, what is the likelyhood that I will feel pain when this is complete? Oh, we guess that there is a 65% chance you will still have pain once we go through this procedure. And did we mention that you'll need to donate at least three to four pints of your own blood for this procedure? Ahhhh, can someone please show me where the door is? They then sent me to a head doctor who taught me how to meditate so that I could live with my pain. My pain level is between a 6 and 8 every day. Yes, I said every day. My objective when I wake up every morning is to put that pain in the back of my brain, pretend it's not jabbing it's way to the front and go forward. Some days I'm not so successful. And it took me months to get to the point where I was no longer bitter, angry and depressed because it meant I couldn't do what I used to do. Then I decided, the hell with it, I'm tired of focusing on this damn pain and letting it rule my life. I'm going forward and to hell with it.....the majority of the days it works. Some days I'm too tired from fighting it and I just do what I know makes me feel better: warm baths, my pilates machine, stretching, being at the barn, laying in bed and watching a funny movie. When it gets too bad, my wonderful husband gives me a back rub and relieves my aches and pains with love. Those are the best. Then he bought me an inversion table and that hangs me upside down and takes the pressure off of my back. I also muscle through and have stopped sitting on the side-lines and am doing all the things I thought I couldn't do. Like riding horses, taking long walks or long car rides, etc. There is an article in Self magazine this month that talks about chronic pain and how you have to kick it's ass, early, one way or another (and that includes the morphine they are giving you!), because other wise it will be there forever. Check it out. Sorry you're in this mode. Father Adam told me to pray and offer up my pain for whatever (my choice was the little children in MD Anderson who I knew were in more pain than me) and I'd pray to use my pain to relieve theirs. That was very helpful. Sounds corny, but it really did help me get on with my day. Love you, Chica.
Denise :)
Here's hoping someone gets their ass moving about your tests. It's not cool to have that pain all the time. I'm sorry it's hard right now. Keep huggin' that bird talker of yours.
Posted by: traci at January 15, 2008 09:22 AMHey Deb, I'm praying that they find this cause and treat it QUICKLY!!
Cami
Hey Deb,
I'm sorry I haven't touched base with you. My computer crashed in December and I just finally got it back. It had to be completely restored!! I lost everything. I would like to get your email address and mailing address if I could. My new email address is camit614@yahoo.com. I received your Christmas card and LOVED it, but I lost your address on my computer and couldn't send you mine. Please don't post this comment. THanks, Cami