I'm finally back in Seattle after a 3 day baseball trip to Bremerton, WA. Fun. Tim is great. Working on the bbq party for tomorrow.
but...
I'm in extreme pain for some reason. Have a call in to MD Anderson to try to get an appointment when I'm in Houston because I have the following:
Swollen lymph nodes
Extreme fatigue
Major muscle pain in neck and collarbone
random fevers
Some night sweats
Vein across chest was about 4 inches (it's blue and stands out some) is now showing from one shoulder across chest to the other shoulder. It looks weird. I never had it look like that before. It started becoming blue right at the spot of where my central line used to be last year. It worried my charge nurse in San Antonio, so I'm wondering now.
Muscle cramping
Problems swallowing
Muscle weakness
Nausea
I'm not liking it. The nurse said the pain could be from the steroid taper, but in fact I had actually upped my dose from 4mg a day to 8mg a day this past week.
The pain has been so severe, I've been taking Vicodin and muscle relaxers. Makes for a fun_debu, but a high one. Not acceptable on a daily basis.
I leave Seattle on the 25th. One week. I'm really sad, but am trying not to let it bother me. It does. I miss Zoe, but know I will miss Tim (and Seattle) so incredibly much. As Tim Gunn on Project Runway says we are going to try to "make it work." Long distance isn't always easy, but he's special and amazing.
My sweetie and I rode on the Bremerton ferry this morning. A nice, cloudy and cool Seattle day. Perfect weather when you are with someone you love. Actually any weather is perfect, but the coolness makes for a wonderful day.
I can do this. Regardless. I just hope they can fix me.
Your assignment today is to say hi. I've been missing you all bunches.
obviously it is your body going through Zoe withdrawal. sending thoughts and prayers your way in the meantime. keep us updated please.
Posted by: Missy at July 18, 2008 11:46 PMHIIII!!!! [waving spastically at you!]
I had been missing you and your posts, too. But then I realized that you probably were having FUN and if that were the case, I'd have to be happy for you.
I hope the vein & pain thingie is not serious! Just keep the faith that whatever it is, it'll have to get better. I said so.
Enjoy this week and let it linger in your heart and mind. Sounds like a great way to solidify a good thing even if it requires a little work to manage.
Posted by: Bren_Cody'sMom at July 19, 2008 12:55 PMOh I am not "liking that list of ick you wrote".
But I am glad you have Tim in your life, and are having fun.
Treasure this week!
XO
Posted by: claire at July 19, 2008 06:49 PMI'm so glad you are enjoying Seattle and are so happy. Have you been pushing yourself too much? It sounds like you have worn yourself out!! Whatever is going on, worry about it when you get to the hospital. For now, savor your time with Tim. I'm sending good vibes your way. --Jeanie
Posted by: Jeanie at July 19, 2008 10:36 PMi've rode the Bremerton ferry!!!
i use to live in washington... bothell, kirkland, redmond and seattle.
i love it there!
Posted by: miah at July 22, 2008 09:06 PM