Yesterday I got up at the crack of ass to be at the clinic at 6:30. I had even confirmed the appointment the day before. So Dad drives me over and they have no record of it. I was super grouchy!
I then call the office and they rescheduled me for today at 7:30. I show up at the office and again, they have no record of an appointment for me. Turns out they have the wrong area code for my phone. She swore she tried to call me three times. But, thank goodness, they worked me in.
Looks like there is a possibility that I have graft-vs-host in my throat. He did 4 biopsies and I should get results in a few weeks.
Got other test results from MD Anderson yesterday. I have gvh of my skin, but not of my muscles. There is a possibility that I now have arthritis from some strange reaction of all the infections I had on my immune system. Lovely. Back on steroids. Bumped up to 16mg a day. Swollen face, here I come. So not cute.
Still in great amounts of pain and all I feel like doing is sleeping. In an ok mood, but am tired of feeling craptastic. It really gets me discouraged to not be able to move. I'm at the point where I can't roll over in bed because it hurts too much.
Zoe is doing great. Way too much homework though. It's hard to get it all done some days. But her little cousin is here and they are just cute as heck - like sisters!
I can do this. I need to eat, but can't swallow. Soup, here I come.
Your assignment today is to pray and send good vibes to the folks of Houston and the Gulf Coast. It is just a terrible mess.
I miss Seattle and my Seattle people!
Posted by debutaunt at September 17, 2008 03:47 PMPraying and sending good vibes to Houston/Gulf Coast and to you!
Posted by: Renato M. at September 17, 2008 04:27 PMI believe you are a born survivor. You dig in and keep going. Nobody or nothing will get in your way.
Prayers are a daily part of my life for you, your loved ones, and all humans facing struggles.
Posted by: claire at September 17, 2008 08:34 PMPrayers being sent. You are such an amazing person. You might not feel it, but you are truly an inspiration. And I know sometimes you want to give up the inspiration part for "normal". Just know that we are here reading, keeping track, and sending prayers.
Posted by: Missy at September 17, 2008 09:13 PMSending prayers & positivity to all of the people hit by Ike. I hope you bounce back soon folks. You too,Debba.
Hugs,
EV
Posted by: Maui Cousin at September 17, 2008 09:31 PMHi Deb - sleep away - your body heals itself when you are asleep. You are always in my prayers and I hope you are feeling better soon.
Christopher and I survived Ike okay - still no power though. Luckily I have a gas hot water heater so I have hot showers but I look like Little Orphan Annie with the frizzy hair since I can't blow dry it. Give our love to Zoe. Hugs!
Posted by: Julie K at September 18, 2008 10:27 AMDebs--I was wondering how close you were to the Ike Zone, but this post answers that question. Glad you and Zoe are safe.
Hang in there with all these gvh issues--and know that your friends will do anything and everything we can to help you get strong again.
Love from Seattle,
Jeanne
Posted by: Jeanne at September 18, 2008 09:09 PMDebs--I was wondering how close you were to the Ike Zone, but this post answers that question. Glad you and Zoe are safe.
Hang in there with all these gvh issues--and know that your friends will do anything and everything we can to help you get strong again.
Love from Seattle,
Jeanne
Posted by: Jeanne at September 18, 2008 09:09 PMhere's special picture for you...
http://www.flickr.com/photos/whidbychick/2869774112/
xoxo,
sis #2
p.s. - don't forget to click on "view on black" for a better perspective
Posted by: sis #2 at September 19, 2008 09:47 AM